Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Degos Disease


Synonyms of Degos Disease
  • Degos-Kohlmeier Disease
  • Degos Syndrome
  • Kohlmeier-Degos Disease
  • Malignant Atrophic Papulosis

Disorder Subdivisions



    General Discussion
    Degos disease is a rare systemic disorder that affects small and medium sized arteries, causing them to become blocked (occlusive arteriopathy). Degos disease usually progresses through two stages. During the first stage, characteristic skin lesions appear that may last for a period of time ranging from weeks to years. The second stage of Degos disease is most frequently characterized by lesions in the small intestine, but other organs may also be affected. Major symptoms may include abdominal pain, diarrhea, and/or weight loss. Intestinal lesions may break through the wall of the bowel (perforation), a potentially life-threatening complication. The exact cause of Degos disease is unknown.
    .

    Organizations related to Degos Disease
    • Degos Patients' Support Network
      28 Glenville Road
      Rustington, West Sussex None BN16 2EA
      Phone #: 44 -190-3 787737
      800 #: N/A
      e-mail: judith@degosdisease.com
      Home page: http://www.degosdisease.com
    • Digestive Disease National Coalition
      507 Capitol Court
      Washington DC 20002
      Phone #: 202-544-7497
      800 #: --
      e-mail: scott@hmcw.org
      Home page: http://www.ddnc.org
    • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
      150 Custer Court
      Green Bay WI 54301-1243
      Phone #: 920-336-5333
      800 #: 877-336-5333
      e-mail: mums@netnet.net
      Home page: http://www.netnet.net/mums/
    • Madisons Foundation
      PO Box 241956
      Los Angeles CA 90024
      Phone #: 310-264-0826
      800 #: N/A
      e-mail: getinfo@madisonsfoundation.org
      Home page: http://www.madisonsfoundation.org
    • NIH/National Digestive Diseases Information Clearinghouse
      2 Information Way
      Bethesda MD 20892-3570
      Phone #: 301-654-3810
      800 #: 800-891-5389
      e-mail: nddic@info.niddk.nih.gov
      Home page: http://www.niddk.nih.gov



    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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