Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Diencephalic Syndrome


Synonyms of Diencephalic Syndrome
  • Diencephalic Syndrome of Childhood
  • Diencephalic Syndrome of Emaciation
  • Paramedian Diencephalic Syndrome
  • Russell's Diencephalic Cachexia
  • Russell's Syndrome

Disorder Subdivisions



    General Discussion
    The diencephalic syndrome is a very rare neurological disorder characterized by failure to thrive, abnormal thinness (emaciation), amnesia, intense sleepiness, unusual eye position and sometimes blindness. It is normally seen in infancy or early childhood but some cases have been reported in older children and even adults. Diencephalic syndrome is usually caused by a brain tumor such as a low-grade glioma or astrocytoma..

    Organizations related to Diencephalic Syndrome
    • American Cancer Society, Inc.
      1599 Clifton Road NE
      Atlanta GA 30329
      Phone #: 404-320-3333
      800 #: 800-227-2345
      e-mail: N/A
      Home page: http://www.cancer.org
    • Children's Brain Tumor Foundation
      274 Madison Avenue
      New York NY 10016
      Phone #: 212-448-9494
      800 #: 866-228-4673
      e-mail: info@cbtf.org
      Home page: http://www.cbtf.org
    • Friends of Cancer Research
      2231 Crystal Drive
      Arlington VA 22202
      Phone #: 703-302-1503
      800 #: N/A
      e-mail: info@focr.org
      Home page: http://www.focr.org
    • Guardians of Hydrocephalus Research Foundation
      2618 Avenue Z
      Brooklyn NY 11235
      Phone #: 718-743-4473
      800 #: 800-458-8655
      e-mail: GHRF2618@aol.com
      Home page: N/A
    • Hydrocephalus Association
      870 Market Street
      San Francisco CA 94102
      Phone #: 415-732-7040
      800 #: 888-598-3789
      e-mail: pip@hydroassoc.org
      Home page: http://www.hydroassoc.org
    • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
      150 Custer Court
      Green Bay WI 54301-1243
      Phone #: 920-336-5333
      800 #: 877-336-5333
      e-mail: mums@netnet.net
      Home page: http://www.netnet.net/mums/
    • Madisons Foundation
      PO Box 241956
      Los Angeles CA 90024
      Phone #: 310-264-0826
      800 #: N/A
      e-mail: getinfo@madisonsfoundation.org
      Home page: http://www.madisonsfoundation.org
    • National Brain Tumor Society
      124 Watertown Street, Suite 2D
      Watertown MA 02472
      Phone #: 617-924-9997
      800 #: (80-0) -770-8287
      e-mail: info@braintumor.org
      Home page: http://www.braintumor.org
    • National Hydrocephalus Foundation
      12413 Centralia
      Lakewood CA 90715-1623
      Phone #: 562-924-6666
      800 #: 888-857-3434
      e-mail: nhf@earthlink.net
      Home page: http://www.nhfonline.org
    • Pediatric Brain Tumor Foundation
      302 Ridgefield Court
      Asheville NC 28806
      Phone #: 828-665-6891
      800 #: 800-253-6530
      e-mail: N/A
      Home page: http://www.pbtfus.org



    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html