Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Emphysema, Congenital Lobar


Synonyms of Emphysema, Congenital Lobar
  • CLE
  • Congenital Pulmonary Emphysema
  • Emphysema, Localized Congenital
  • Lobar Emphysema, Infantile
  • Lobar Tension Emphysema in Infancy

Disorder Subdivisions



    General Discussion
    Congenital lobar emphysema is a rare respiratory disorder in which air can enter the lungs but cannot escape, causing overinflation (hyperinflation) of the lobes of the lung. It is most often detected in newborns or young infants, but some cases do not become apparent until adulthood. This disorder may be severe enough to cause associated heart problems (15% of cases) or so mild as to never become apparent. Some cases of congenital lobar emphysema may be caused by autosomal dominant inheritance while others occur for no apparent reason (sporadic).
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    Organizations related to Emphysema, Congenital Lobar
    • American Lung Association
      61 Broadway, 6th Floor
      New York NY 10006
      Phone #: 212-315-8700
      800 #: 800-586-4872
      e-mail: N/A
      Home page: http://www.lungusa.org
    • COPD-ALERT
      3210 N. Leisure World Blvd.
      Silver Spring MD 20906
      Phone #: 301-598-6693
      800 #: N/A
      e-mail: vlady@copd-alert.com
      Home page: http://www.copd-alert.com
    • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
      150 Custer Court
      Green Bay WI 54301-1243
      Phone #: 920-336-5333
      800 #: 877-336-5333
      e-mail: mums@netnet.net
      Home page: http://www.netnet.net/mums/
    • March of Dimes Birth Defects Foundation
      1275 Mamaroneck Avenue
      White Plains NY 10605
      Phone #: 914-428-7100
      800 #: 888-663-4637
      e-mail: Askus@marchofdimes.com
      Home page: http://www.marchofdimes.com
    • NIH/National Heart, Lung and Blood Institute Information Center
      P.O. Box 30105
      Bethesda MD 20824-0105
      Phone #: 301-592-8573
      800 #: --
      e-mail: nhlbiinfo@rover.nhlbi.nih.gov
      Home page: N/A



    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html