Disorder Subdivisions
75 Maiden Lane
New York NY 10038
Phone #: 212-668-1000
800 #: 800-465-4837
e-mail: info@liverfoundation.org
Home page: http://www.liverfoundation.org
Climb Building
Crewe Intl CW2 6BG
Phone #: +44- 87-0 7700 325
800 #: --
e-mail: info@climb.org.uk
Home page: http://www.CLIMB.org.uk
None
None IN None
Phone #: N/A
800 #: --
e-mail: mail@liverkids.org.au
Home page: http://www.liverkids.org.au
Institute of Child Health
Liverpool None L12 2 AP
Phone #: +44- (0-) 1512525696
800 #: --
e-mail: cfgd@liv.ac.uk
Home page: http://www.liv.ac.uk/cfgd/
31 Cotysmore Road
West Midlands None B75 6BJ
Phone #: N/A
800 #: --
e-mail: sue@gsg1.freeserve.co.uk
Home page: http://www.galactosaemia.org/
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: getinfo@madisonsfoundation.org
Home page: http://www.madisonsfoundation.org
2 Information Way
Bethesda MD 20892-3570
Phone #: 301-654-3810
800 #: 800-891-5389
e-mail: nddic@info.niddk.nih.gov
Home page: http://www.niddk.nih.gov
1519 Magnolia Bluff
Gautier MS 39553
Phone #: 228-497-5886
800 #: 866-900-7421
e-mail: president@galactosemia.org
Home page: http://www.galactosemia.org
Frederiksholms Kanal 2, 3rd Floor
Copenhagen K None 1220
Phone #: 45 -33 -14 00 10
800 #: N/A
e-mail: mail@sjaeldnediagnoser
Home page: http://www.raredisorders.dk
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html
İçerik bulunamadı.
İçerik bulunamadı.