Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Myositis, Inclusion Body


Synonyms of Myositis, Inclusion Body
  • IBM

Disorder Subdivisions

  • Inflammatory Myopathy


General Discussion
Inclusion body myositis (IBM) is a rare inflammatory muscular disorder that usually becomes apparent during adulthood. The disorder presents as slow progressive weakness and withering away (atrophy) of the muscles (myositis), especially of the arms and legs. Inclusion body myositis frequently is diagnosed when a patient is unresponsive to therapy prescribed for polymyositis.

IBM is characterized by the gradual onset (over months or years) of muscle fatigue and weakness; a clear tendency to strike men more frequently than women; and affecting both the muscles closest to the body?s trunk (proximal) and those farthest from the trunk (distal). Onset is usually after age 50, although it may occur earlier.
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Organizations related to Myositis, Inclusion Body
  • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
    150 Custer Court
    Green Bay WI 54301-1243
    Phone #: 920-336-5333
    800 #: 877-336-5333
    e-mail: mums@netnet.net
    Home page: http://www.netnet.net/mums/
  • Muscular Dystrophy Association
    3300 E. Sunrise Dr
    Tucson AZ 85718
    Phone #: 520-529-2000
    800 #: 800-344-4863
    e-mail: mda@mdausa.org
    Home page: http://www.mdausa.org
  • Myositis Association
    1233 20th Street NW
    Washington DC 20036
    Phone #: 202-877-0088
    800 #: 800-821-7356
    e-mail: tma@myositis.org
    Home page: http://www.myositis.org
  • Myositis Support Group at the Hospital for Special Surgery
    Hospital for Special Surgery
    New York NY 10021
    Phone #: 212-774-7623
    800 #: N/A
    e-mail: fischbeins@hss.edu
    Home page: http://www.hss.edu/myositisgroup
  • NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
    1 AMS Circle
    Bethesda MD 20892-3675
    Phone #: 301-495-4484
    800 #: 877-226-4267
    e-mail: NIAMSinfo@mail.nih.gov
    Home page: http://www.niams.nih.gov/Health_Info



For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html