Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Pseudotumor Cerebri


Synonyms of Pseudotumor Cerebri
  • Benign Intracranial Hypertension
  • Idiopathic Intracranial Hypertension (Primary Intracranial Hypertension)
  • Secondary Intrcranial Hypertension

Disorder Subdivisions



    General Discussion
    Intracranial Hypertension (Pseudotumor cerebri) is characterized by increased pressure inside the skull. Intracranial means inside the skull and hypertension means high fluid pressure. Basically, the pressure of the fluid that surrounds the brain (cerebrospinal fluid or CSF) is too high. Elevated CSF pressure produces severe headache and often visual difficulties, which, if left untreated can result in loss of vision or blindness.

    Pseudotumor Cerebri and Benign Intracranial Hypertension are both former names for Intracranial Hypertension (IH) which are now considered inaccurate. These names do not adequately describe the disorder and downplay the seriousness of IH. There are two categories of IH: Primary Intracranial Hypertension and Secondary Intracranial Hypertension.

    Primary Intracranial Hypertension, also known as Idiopathic Intracranial Hypertension (IIH), occurs without known cause. This form most often occurs in young, overweight, females in their reproductive years (ages 20-45).

    Secondary Intracranial Hypertension has an identifiable, causative agent, including drugs
    (such as tetracycline, lithium, Vitamin A-derived oral acne medications, and steroids, especially during withdrawal), growth hormone treatments, excessive ingestion of Vitamin A, sleep apnea and certain systemic diseases such as lupus, leukemia, kidney failure (uremia), meningitis and dural venous sinus thrombosis. Many other causes have been suggested in the medical literature but have not yet been confirmed as true causes.

    Although many factors are known to trigger the disease, the mechanism by which IH occurs, in either Primary or Secondary forms, is not known. In many cases, either type of IH may be chronic.
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    Organizations related to Pseudotumor Cerebri
    • Chiari & Syringomyelia Foundation (CSF)
      29 Crest Loop
      Staten Island NY 10312
      Phone #: 718--96-6-2593
      800 #: N/A
      e-mail: dpoppe@CSFinfo.org
      Home page: http://www.CSFinfo.org
    • Intracranial Hypertension Research Foundation (IHRF)
      6517 Buena Vista Dr
      Vancouver WA 98661
      Phone #: 360-693-4473
      800 #: --
      e-mail: info@ihrfoundation.org
      Home page: http://www.ihrfoundation.org
    • Madisons Foundation
      PO Box 241956
      Los Angeles CA 90024
      Phone #: 310-264-0826
      800 #: N/A
      e-mail: getinfo@madisonsfoundation.org
      Home page: http://www.madisonsfoundation.org
    • National Institute of Neurological Disorders and Stroke (NINDS)
      31 Center Drive
      Bethesda MD 20892-2540
      Phone #: 301-496-5751
      800 #: 800-352-9424
      e-mail: braininfo@ninds.nih.gov
      Home page: http://www.ninds.nih.gov/
    • Pseudotumor Cerebri Support Network
      3521 Westbay Drive
      Columbus OH 43231
      Phone #: N/A
      800 #: --
      e-mail: ptcduncan@juno.com
      Home page: http://www.findmemyhouse.com/ptc/ptcsn.html



    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html