Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Pulmonary Hypertension, Primary


Synonyms of Pulmonary Hypertension, Primary
  • Familial Primary Pulmonary Hypertension
  • PPH
  • Primary Obliterative Pulmonary Vascular Disease
  • Primary Pulmonary Hypertension
  • Pulmonary Arterial Hypertension

Disorder Subdivisions



    General Discussion
    Primary pulmonary hypertension is a rare, progressive disorder characterized by high blood pressure (hypertension) of the main artery of the lungs (pulmonary artery). The pulmonary artery is the blood vessel that carries blood from the heart through the lungs. Symptoms of primary pulmonary hypertension include shortness of breath (dyspnea) especially during exercise, chest pain, and fainting episodes. The exact cause of primary pulmonary hypertension is unknown.
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    Organizations related to Pulmonary Hypertension, Primary
    • American Heart Association
      National Center
      Dallas TX 75231-4596
      Phone #: 214-373-6300
      800 #: 800-242-8721
      e-mail: inquire@heart.org
      Home page: http://www.americanheart.org
    • American Lung Association
      61 Broadway, 6th Floor
      New York NY 10006
      Phone #: 212-315-8700
      800 #: 800-586-4872
      e-mail: N/A
      Home page: http://www.lungusa.org
    • International Scleroderma Network
      7455 France Ave So #266
      Edina MN 55435
      Phone #: 952-831-3091
      800 #: 800-564-7099
      e-mail: site-inquiries@sclero.org
      Home page: http://www.sclero.org
    • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
      150 Custer Court
      Green Bay WI 54301-1243
      Phone #: 920-336-5333
      800 #: 877-336-5333
      e-mail: mums@netnet.net
      Home page: http://www.netnet.net/mums/
    • NIH/National Heart, Lung and Blood Institute Information Center
      P.O. Box 30105
      Bethesda MD 20824-0105
      Phone #: 301-592-8573
      800 #: --
      e-mail: nhlbiinfo@rover.nhlbi.nih.gov
      Home page: N/A
    • Newman, John H., M.D.
      Vanderbilt University
      Nashville TN 37232
      Phone #: 615-386-6891
      800 #: --
      e-mail: N/A
      Home page: N/A
    • PHCentral
      1309 12th Ave.
      San Francisco CA 94122-2213
      Phone #: 415-564-0707
      800 #: --
      e-mail: cswitzer@phcentral.org
      Home page: http://www.phcentral.org
    • Pulmonary Hypertension Association
      801 Roeder Rd.
      Silver Spring MD 20910
      Phone #: 301-565-3004
      800 #: 800-748-7274
      e-mail: info@phassociation.org
      Home page: http://www.phassociation.org
    • UCSF Pulmonary Hypertension Clinic
      400 Parnassus Ave.
      San Francisco CA 94143
      Phone #: 415-353-2873
      800 #: N/A
      e-mail: N/A
      Home page: http://www.ucsfhealth.org/adult/medical_services/heart_care/hypertension/index.html



    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html