Disorder Subdivisions
The Jackson Laboratory
Bar Harbor ME 04609
Phone #: 207-244-7043
800 #: 800-371-3628
e-mail: [email protected]
Home page: http://www.jax.org/alstrom
11730 Plaza America
Reston VA 20190
Phone #: 703-790-8466
800 #: 800-222-2336
e-mail: [email protected]
Home page: http://www.audiology.org
PO Box 3355
Gettysburg PA 17325
Phone #: 800-942-6084
800 #: 800-942-2732
e-mail: [email protected]
Home page: http://www.deafchildren.org
515 King Street, Suite 420
Alexandria VA 22314
Phone #: 703-684-3391
800 #: 800-327-9355
e-mail: [email protected]
Home page: http://www.betterhearing.org
4120 Marathon Street
Los Angeles CA 90029-3584
Phone #: 323-664-2153
800 #: 800-222-3566
e-mail: [email protected]
Home page: http://www.blindchildrenscenter.org
311 W. Broadway
Mt. Pleasant MI 48858
Phone #: 989-779-9966
800 #: --
e-mail: [email protected]
Home page: http://www.blindchildrensfund.org
40 The Metro Centre
Hertfordshire Intl WD1 8SB
Phone #: 014-419-23249977
800 #: --
e-mail: [email protected]
Home page: http://www.cardiomyopathy.org
PO Box 547
Tenafly NJ 07670
Phone #: 866-808-2873
800 #: --
e-mail: [email protected]
Home page: http://www.childrenscardiomyopathy.org
11435 Cronhill Drive
Owings Mills MD 21117-2220
Phone #: 410-568-0150
800 #: 800-683-5555
e-mail: [email protected]
Home page: http://www.fightblindness.org
250 El Camino Real
Tustin CA 92780
Phone #: 714-368-3689
800 #: 888-572-2001
e-mail: [email protected]
Home page: http://www.lpaonline.org
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: [email protected]
Home page: http://www.netnet.net/mums/
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: [email protected]
Home page: http://www.madisonsfoundation.org
1275 Mamaroneck Avenue
White Plains NY 10605
Phone #: 914-428-7100
800 #: 888-663-4637
e-mail: [email protected]
Home page: http://www.marchofdimes.com
Jackson Laboratory
Bar Harbor ME. 04609
Phone #: 207-288-3371
800 #: --
e-mail: N/A
Home page: N/A
Building 31 Rm 6A32
Bethesda MD 20892-2510
Phone #: 301-496-5248
800 #: --
e-mail: [email protected]
Home page: http://www.nei.nih.gov/
National Temporal Bone, Hearing
Boston MA 02114-3096
Phone #: --
800 #: 800-822-1327
e-mail: [email protected]
Home page: http://www.tbregistry.org
P.O. Box 317
Watertown MA 02472
Phone #: 617-972-7441
800 #: 800-562-6265
e-mail: [email protected]
Home page: http://www.napvi.org
22 West 21st Street
New York NY 10010
Phone #: 212-889-3141
800 #: --
e-mail: [email protected]
Home page: http://www.navh.org
The Teaching Research Institute
Monmouth OR 97361
Phone #: 800-438-9376
800 #: 800-438-9376
e-mail: [email protected]
Home page: http://www.nationaldb.org
175 North Beacon St.
Watertown MA 02472
Phone #: 617-924-3434
800 #: N/A
e-mail: [email protected]
Home page: http://www.Perkins.org
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html
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