Alveolar Capillary Dysplasia / Disease

Diseases & Conditions

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Alveolar Capillary Dysplasia

Synonyms of Alveolar Capillary Dysplasia

Disorder Subdivisions

General Discussion
Alveolar capillary dysplasia (ACD) is a rare, likely congenital, disorder of the lungs (pulmonary system) and especially of the blood system serving the lungs. It is a disorder of the newborn. The normal diffusion process of oxygen from the air sacs to the blood in the lungs and, thence, to the heart, fails to develop properly. The disorder is sometimes called misalignment of the pulmonary veins. Rather than misaligned, the pulmonary vein is malpositioned in a site somewhat different from its normal position.

Infants with the disorder present with the signs of lack of oxygen (hypoxemia) and severely increased pulmonary hypertension.

Since treatment is seldom, if ever, effective, life expectancy of the infant is very, very, short.
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Organizations related to Alveolar Capillary Dysplasia

Alveolar Capillary Dysplasia Association
5902 Marcie Court
Garland TX 75044-4958
Phone #: 972-414-4422
800 #: --
e-mail: [email protected]
Home page: http://www.acd-association.com
American Lung Association
61 Broadway, 6th Floor
New York NY 10006
Phone #: 212-315-8700
800 #: 800-586-4872
e-mail: N/A
Home page: http://www.lungusa.org
Fetal Hope Foundation
9786 S Holland Street
Littelton CO 80127
Phone #: 303-932-0553
800 #: 877-789-4673
e-mail: [email protected]
Home page: http://www.fetalhope.org
Infants Remembered In Silence, Inc. (IRIS)
101 Third Street NW
Faribault MN 55021
Phone #: 507-334-4748
800 #: N/A
e-mail: [email protected]
Home page: http://www.irisRemembers.com
MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: [email protected]
Home page: http://www.netnet.net/mums/
Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: [email protected]
Home page: http://www.madisonsfoundation.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html