Disorder Subdivisions
123 Edward St
Ontario None M5G 1E2
Phone #: 416-597-2229
800 #: 800-665-3223
e-mail: [email protected]
Home page: http://www.aboutfaceinternational.org
PO Box 751112
Las Vegas NV 89136
Phone #: 702-769-9264
800 #: 888-486-1209
e-mail: [email protected]
Home page: http://www.ameriface.org
National Center
Dallas TX 75231-4596
Phone #: 214-373-6300
800 #: 800-242-8721
e-mail: [email protected]
Home page: http://www.americanheart.org
P.O. Box 1184
Fair Oaks CA 95628
Phone #: 916-961-1092
800 #: --
e-mail: [email protected]
Home page: http://www.apert.org
8708 Kathy
St. Louis MO 63126
Phone #: 314-965-3356
800 #: --
e-mail: N/A
Home page: N/A
13140 Coit Road
Dallas TX 75240
Phone #: 214-570-9099
800 #: 800-535-3643
e-mail: [email protected]
Home page: http://www.ccakids.com
2112 North Wilkins Road
Swanton OH 43558
Phone #: 419-825-5575
800 #: --
e-mail: [email protected]
Home page: http://www.csun.edu/~hcmth011/chaser/chaser-news.html
975 East Third Street
Chattanooga TN 37403
Phone #: 423-778-9192
800 #: 800-418-3223
e-mail: [email protected]
Home page: http://www.craniofacialcenter.com
Dronningeengen 17
Vedbaek Intl DK-2950
Phone #: +45- 45-89 0300
800 #: --
e-mail: [email protected]
Home page: N/A
P.O. Box 11082
Chattanooga TN 37401
Phone #: 423-266-1632
800 #: 800-332-2373
e-mail: [email protected]
Home page: http://www.faces-cranio.org
317 East 34th Street
New York NY 10016
Phone #: 212-684-5860
800 #: 800-393-3223
e-mail: [email protected]
Home page: http://www.forwardface.org
128 Beesmoor Road
Bristol Intl BS36 2JP
Phone #: 44--014-54-850557
800 #: N/A
e-mail: [email protected]
Home page: http://www.headlines.org.uk
P.O. Box 29972
Bellingham WA 98228-1972
Phone #: 360-676-7325
800 #: --
e-mail: [email protected]
Home page: http://www.dent.umich.edu/faceit
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: [email protected]
Home page: http://www.netnet.net/mums/
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: [email protected]
Home page: http://www.madisonsfoundation.org
3100 Carlisle Street
Dallas TX 75204
Phone #: --
800 #: 800-535-3643
e-mail: N/A
Home page: N/A
317 East 34th St.
New York NY 10016
Phone #: 212-263-6656
800 #: 800-422-3223
e-mail: [email protected]
Home page: http://www.nffr.org
Frederiksholms Kanal 2, 3rd Floor
Copenhagen K None 1220
Phone #: 45 -33 -14 00 10
800 #: N/A
e-mail: [email protected]
Home page: http://www.raredisorders.dk
1010 Wayne Ave
Silver Spring MD 20910
Phone #: 301-565-3842
800 #: 800-433-5255
e-mail: [email protected]
Home page: http://www.thearc.org/
Department of Plastic Surgery
Charlottesville VA 22908
Phone #: 804-924-5068
800 #: 800-251-3627
e-mail: [email protected]
Home page: N/A
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html
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