Arnold-Chiari Malformation / Disease

Diseases & Conditions

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Arnold-Chiari Malformation

Synonyms of Arnold-Chiari Malformation

ACM
Arnold-Chiari Malformation
Cerebellomedullary Malformation Syndrome

Disorder Subdivisions

Chiari Type I (Chiari Malformation I)
Chiari Type II (Chiari Malformation II)

General Discussion
Arnold-Chiari malformation is a rare malformation of the brain that is sometimes, but not always, apparent at birth. It is characterized by abnormalities in the area where the brain and spinal cord meet that cause part of the cerebellum to protrude through the bottom of the skull (foramen magnum) into the spinal canal. This interferes with the flow of cerebral spinal fluid to and from the brain, leading to accumulation of cerebral spinal fluid in the empty spaces of the spine and brain. The portion of the cerebellum that protrudes into the spinal canal can become elongated and is called the cerebellar tonsils because it resembles the tonsils.

There are four types of Chiari malformation. Depending on the type, the impact on the affected individual may range from mild to severe.

Organizations related to Arnold-Chiari Malformation

American Association of Neurological Surgeons
5550 Meadowbrook Drive
Rolling Meadows IL 60008-3852
Phone #: 847-378-0500
800 #: 888-566-2267
e-mail: [email protected]
Home page: http://www.NeurosurgeryToday.org
American Syringomyelia Alliance Project, Inc. (ASAP)
300 N. Green Street, Suite 412
Longview TX 75601
Phone #: 903-236-7079
800 #: 800-272-7282
e-mail: [email protected]
Home page: http://www.asap.org
Birth Defect Research for Children
930 Woodcock Rd
Orlando FL 32803
Phone #: 407-895-0802
800 #: --
e-mail: [email protected]
Home page: http://www.birthdefects.org
C&S Patient Education Foundation
320 Osprey Court
Wexford PA 15090
Phone #: 724-940-0116
800 #: N/A
e-mail: N/A
Home page: N/A
Canadian Syringomyelia Network
69 Penny Crescent
Ontario None L3P 5X7
Phone #: 905-471-8278
800 #: --
e-mail: [email protected]
Home page: http://www.csn.ca
Chiari & Syringomyelia Foundation (CSF)
29 Crest Loop
Staten Island NY 10312
Phone #: 718--96-6-2593
800 #: N/A
e-mail: [email protected]
Home page: http://www.CSFinfo.org
Chiari and Syringomyelia Network
4231 N. Winfield Scott Plaza #7
Scottsdale AZ 85251
Phone #: 480-350-7177
800 #: 866-661-7607
e-mail: [email protected]
Home page: http://www.chiarisn.org
Hydrocephalus Association
870 Market Street
San Francisco CA 94102
Phone #: 415-732-7040
800 #: 888-598-3789
e-mail: [email protected]
Home page: http://www.hydroassoc.org
Hydrocephalus Support Group, Inc.
P.O. Box 4236
Chesterfield MO 63006-4236
Phone #: 636-532-8228
800 #: --
e-mail: [email protected]
Home page: N/A
MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: [email protected]
Home page: http://www.netnet.net/mums/
Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: [email protected]
Home page: http://www.madisonsfoundation.org
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains NY 10605
Phone #: 914-428-7100
800 #: 888-663-4637
e-mail: [email protected]
Home page: http://www.marchofdimes.com
National Institute of Neurological Disorders and Stroke (NINDS)
31 Center Drive
Bethesda MD 20892-2540
Phone #: 301-496-5751
800 #: 800-352-9424
e-mail: [email protected]
Home page: http://www.ninds.nih.gov/
Spina Bifida Association of America
4590 MacArthur Boulevard NW
Washington DC 20007-4226
Phone #: 202-944-3285
800 #: 800-621-3141
e-mail: [email protected]
Home page: http://www.sbaa.org
World Arnold Chiari Malformation Association
31 Newtown Woods Road
Newtown Square PA 19073
Phone #: 610-353-4737
800 #: N/A
e-mail: [email protected]
Home page: http://www.wacma.com

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html