Diseases & Conditions


Arnold-Chiari Malformation

Synonyms of Arnold-Chiari Malformation
  • ACM
  • Arnold-Chiari Malformation
  • Cerebellomedullary Malformation Syndrome

Disorder Subdivisions

  • Chiari Type I (Chiari Malformation I)
  • Chiari Type II (Chiari Malformation II)

General Discussion
Arnold-Chiari malformation is a rare malformation of the brain that is sometimes, but not always, apparent at birth. It is characterized by abnormalities in the area where the brain and spinal cord meet that cause part of the cerebellum to protrude through the bottom of the skull (foramen magnum) into the spinal canal. This interferes with the flow of cerebral spinal fluid to and from the brain, leading to accumulation of cerebral spinal fluid in the empty spaces of the spine and brain. The portion of the cerebellum that protrudes into the spinal canal can become elongated and is called the cerebellar tonsils because it resembles the tonsils.

There are four types of Chiari malformation. Depending on the type, the impact on the affected individual may range from mild to severe.

Organizations related to Arnold-Chiari Malformation
  • American Association of Neurological Surgeons
    5550 Meadowbrook Drive
    Rolling Meadows IL 60008-3852
    Phone #: 847-378-0500
    800 #: 888-566-2267
    e-mail: [email protected]
    Home page: http://www.NeurosurgeryToday.org
  • American Syringomyelia Alliance Project, Inc. (ASAP)
    300 N. Green Street, Suite 412
    Longview TX 75601
    Phone #: 903-236-7079
    800 #: 800-272-7282
    e-mail: [email protected]
    Home page: http://www.asap.org
  • Birth Defect Research for Children
    930 Woodcock Rd
    Orlando FL 32803
    Phone #: 407-895-0802
    800 #: --
    e-mail: [email protected]
    Home page: http://www.birthdefects.org
  • C&S Patient Education Foundation
    320 Osprey Court
    Wexford PA 15090
    Phone #: 724-940-0116
    800 #: N/A
    e-mail: N/A
    Home page: N/A
  • Canadian Syringomyelia Network
    69 Penny Crescent
    Ontario None L3P 5X7
    Phone #: 905-471-8278
    800 #: --
    e-mail: [email protected]
    Home page: http://www.csn.ca
  • Chiari & Syringomyelia Foundation (CSF)
    29 Crest Loop
    Staten Island NY 10312
    Phone #: 718--96-6-2593
    800 #: N/A
    e-mail: [email protected]
    Home page: http://www.CSFinfo.org
  • Chiari and Syringomyelia Network
    4231 N. Winfield Scott Plaza #7
    Scottsdale AZ 85251
    Phone #: 480-350-7177
    800 #: 866-661-7607
    e-mail: [email protected]
    Home page: http://www.chiarisn.org
  • Hydrocephalus Association
    870 Market Street
    San Francisco CA 94102
    Phone #: 415-732-7040
    800 #: 888-598-3789
    e-mail: [email protected]
    Home page: http://www.hydroassoc.org
  • Hydrocephalus Support Group, Inc.
    P.O. Box 4236
    Chesterfield MO 63006-4236
    Phone #: 636-532-8228
    800 #: --
    e-mail: [email protected]
    Home page: N/A
  • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
    150 Custer Court
    Green Bay WI 54301-1243
    Phone #: 920-336-5333
    800 #: 877-336-5333
    e-mail: [email protected]
    Home page: http://www.netnet.net/mums/
  • Madisons Foundation
    PO Box 241956
    Los Angeles CA 90024
    Phone #: 310-264-0826
    800 #: N/A
    e-mail: [email protected]
    Home page: http://www.madisonsfoundation.org
  • March of Dimes Birth Defects Foundation
    1275 Mamaroneck Avenue
    White Plains NY 10605
    Phone #: 914-428-7100
    800 #: 888-663-4637
    e-mail: [email protected]
    Home page: http://www.marchofdimes.com
  • National Institute of Neurological Disorders and Stroke (NINDS)
    31 Center Drive
    Bethesda MD 20892-2540
    Phone #: 301-496-5751
    800 #: 800-352-9424
    e-mail: [email protected]
    Home page: http://www.ninds.nih.gov/
  • Spina Bifida Association of America
    4590 MacArthur Boulevard NW
    Washington DC 20007-4226
    Phone #: 202-944-3285
    800 #: 800-621-3141
    e-mail: [email protected]
    Home page: http://www.sbaa.org
  • World Arnold Chiari Malformation Association
    31 Newtown Woods Road
    Newtown Square PA 19073
    Phone #: 610-353-4737
    800 #: N/A
    e-mail: [email protected]
    Home page: http://www.wacma.com

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html