Degos Disease / Disease

Diseases & Conditions

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Degos Disease

Synonyms of Degos Disease

Degos-Kohlmeier Disease
Degos Syndrome
Kohlmeier-Degos Disease
Malignant Atrophic Papulosis

Disorder Subdivisions

General Discussion
Degos disease is a rare systemic disorder that affects small and medium sized arteries, causing them to become blocked (occlusive arteriopathy). Degos disease usually progresses through two stages. During the first stage, characteristic skin lesions appear that may last for a period of time ranging from weeks to years. The second stage of Degos disease is most frequently characterized by lesions in the small intestine, but other organs may also be affected. Major symptoms may include abdominal pain, diarrhea, and/or weight loss. Intestinal lesions may break through the wall of the bowel (perforation), a potentially life-threatening complication. The exact cause of Degos disease is unknown.
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Organizations related to Degos Disease

Degos Patients' Support Network
28 Glenville Road
Rustington, West Sussex None BN16 2EA
Phone #: 44 -190-3 787737
800 #: N/A
e-mail: judith@degosdisease.com
Home page: http://www.degosdisease.com
Digestive Disease National Coalition
507 Capitol Court
Washington DC 20002
Phone #: 202-544-7497
800 #: --
e-mail: scott@hmcw.org
Home page: http://www.ddnc.org
MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: getinfo@madisonsfoundation.org
Home page: http://www.madisonsfoundation.org
NIH/National Digestive Diseases Information Clearinghouse
2 Information Way
Bethesda MD 20892-3570
Phone #: 301-654-3810
800 #: 800-891-5389
e-mail: nddic@info.niddk.nih.gov
Home page: http://www.niddk.nih.gov

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html