Disorder Subdivisions
Climb Building
Crewe Intl CW2 6BG
Phone #: +44- 87-0 7700 325
800 #: --
e-mail: [email protected]
Home page: http://www.CLIMB.org.uk
PO Box 64714
Ontario Intl L3R OM9
Phone #: 905--47-9-8701
800 #: 800--66-7-1846
e-mail: [email protected]
Home page: http://www.mpssociety.ca
108 NE 2nd St, P.O. Box 510, Concordia, MO 64020-0510
Concordia MO 64020-0510
Phone #: 660-463-1355
800 #: --
e-mail: [email protected]
Home page: http://www.fabry.org
4123 Lankershim Blvd.
North Hollywood CA 91602-2828
Phone #: 818-762-8621
800 #: N/A
e-mail: [email protected]
Home page: http://www.hideandseek.org
Carrera 7 No 43-82
S.A. Edificio 53 Lab. 305A None None
Phone #: 50 -1 3-208320
800 #: N/A
e-mail: [email protected]
Home page: http://www.javeriana.edu.co
Department of Human Genetics
New York NY 10029
Phone #: 212-659-6779
800 #: 800-322-7963
e-mail: [email protected]
Home page: http://www.mssm.edu/genetics/fabry
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: [email protected]
Home page: http://www.netnet.net/mums/
1275 Mamaroneck Avenue
White Plains NY 10605
Phone #: 914-428-7100
800 #: 888-663-4637
e-mail: [email protected]
Home page: http://www.marchofdimes.com
Web Site on the Internet
None None None
Phone #: --
800 #: --
e-mail: [email protected]
Home page: http://www.home.t-online.de/home/026232710-0001/fabrye.htm
4301 Connecticut Ave. N.W.
Washington DC 20008-2369
Phone #: 919-732-9095
800 #: 800-651-9131
e-mail: [email protected]
Home page: http://www.TheNFDF.org
31 Center Drive
Bethesda MD 20892-2540
Phone #: 301-496-5751
800 #: 800-352-9424
e-mail: [email protected]
Home page: http://www.ninds.nih.gov/
PO Box 14686
Durham NC 27709-4686
Phone #: 919-806-0101
800 #: --
e-mail: [email protected]
Home page: http://www.mpssociety.org
2001 Beacon Street
Brighton MA 02135
Phone #: 617-277-4463
800 #: 800-906-8723
e-mail: [email protected]
Home page: http://www.NTSAD.org
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html
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