Disorder Subdivisions
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: [email protected]
Home page: http://www.madisonsfoundation.org
Steve Groft, Pharm.D.
Bethesda MD 20892-
Phone #: 301-402-4336
800 #: --
e-mail: [email protected]
Home page: http://www.rarediseases.info.nih.gov/ord/
P.O. Box 590354
San Francisco CA 94159
Phone #: 415-831-8782
800 #: N/A
e-mail: [email protected]
Home page: http://www.nomidalliance.net
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html
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