Synonyms of Henoch-Schonlein Purpura- Allergic Purpura
- Allergic Vasculitis
- Anaphylactoid Purpura
- Hemorrhagic Capillary Toxicosis
- Henoch-Schonlein Purpura
- HSP
- Leukocytoclastic Vasculitis
- Nonthrombocytopenic Idiopathic Purpura
- Peliosis Rheumatica
- Rheumatic Purpura
- Schonlein-Henoch Purpura
Disorder Subdivisions
- Henoch's Purpura
- Schonlein's Purpura
General DiscussionHenoch-Schonlein purpura is a rare inflammatory disease of the small blood vessels (capillaries) and is usually a self-limited disease. It is the most common form of childhood vascular inflammation (vasculitis) and results in inflammatory changes in the small blood vessels. The symptoms of Henoch-Schonlein purpura usually begin suddenly and may include headache, fever, loss of appetite, cramping abdominal pain, and joint pain. Red or purple spots typically appear on the skin (petechial purpura). Inflammatory changes associated with Henoch-Schonlein purpura can also develop in the joints, kidneys, digestive system, and, in rare cases, the brain and spinal cord (central nervous system).
In one form of the disorder, termed Schonlein's purpura, the skin and joints are affected but the gastrointestinal tract is not. In another form, known as Henoch's purpura, affected individuals have purplish spots on the skin and acute abdominal problems. People with Henoch's purpura are not affected by joint disease.
The exact cause of Henoh-Schonlein purpura is not fully understood, although research suggests that it may be an autoimmune disease or, in some rare cases, an extreme allergic reaction to certain offending substances (e.g., foods or drugs).
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Organizations related to Henoch-Schonlein Purpura- American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Avenue
Eastpointe MI 48021
Phone #: 586-776-3900
800 #: 800-598-4668
e-mail: [email protected]
Home page: http://www.aarda.org/
- American Kidney Fund, Inc.
6110 Executive Boulevard
Rockville MD 20852
Phone #: 301-881-3052
800 #: 800-638-8299
e-mail: [email protected]
Home page: http://www.kidneyfund.org
- AutoImmunity Community
None
None None None
Phone #: (91-9) -552-9057
800 #: N/A
e-mail: [email protected]
Home page: http://autoimmunitycommunity.org
- Kidney & Urology Foundation of America, Inc.
152 Madison Ave.
New York NY 10016
Phone #: 212-629-9770
800 #: 800-633-6628
e-mail: [email protected]
Home page: http://www.kidneyurology.org
- MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: [email protected]
Home page: http://www.netnet.net/mums/
- Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: [email protected]
Home page: http://www.madisonsfoundation.org
- NIH/National Heart, Lung and Blood Institute Information Center
P.O. Box 30105
Bethesda MD 20824-0105
Phone #: 301-592-8573
800 #: --
e-mail: [email protected]
Home page: N/A
- NIH/National Institute of Allergy and Infectious Diseases
6610 Rockledge Drive
Bethesda MD 20892-6612
Phone #: 301-496-5717
800 #: --
e-mail: N/A
Home page: http://www.niaid.nih.gov/
- National Kidney Foundation
30 East 33rd Street
New York NY 10016
Phone #: 212-889-2210
800 #: 800-622-9010
e-mail: [email protected]
Home page: http://www.kidney.org
- Platelet Disorder Support Association
133 Rollins Avenue
Rockville MD 20852
Phone #: 301-770-6636
800 #: 877-528-3538
e-mail: [email protected]
Home page: http://www.pdsa.org
- Vasculitis Foundation
P.O. Box 28660
Kansas City MO 64188
Phone #: 816-436-8211
800 #: 800-277-9474
e-mail: [email protected]
Home page: http://www.vasculitisfoundation.org
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html