Hypoplastic Left Heart Syndrome / Disease

Diseases & Conditions

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Hypoplastic Left Heart Syndrome

Synonyms of Hypoplastic Left Heart Syndrome

Aortic and Mitral Atresia with Hypoplasic Left Heart Syndrome
HLHS

Disorder Subdivisions

General Discussion
Hypoplastic left heart syndrome is a term used to describe a group of closely related rare heart defects that are present at birth (congenital). The normal heart has four chambers. The two upper chambers, known as atria, are separated from each other by a fibrous partition known as the atrial septum. The two lower chambers are known as ventricles and are separated from each other by the ventricular septum. Valves connect the atria (left and right) to their respective ventricles. The valves allow for blood to be pumped through the chambers. Blood travels from the right ventricle through the pulmonary artery to the lungs where it receives oxygen. The blood returns to the heart through pulmonary veins and enters the left ventricle. The left ventricle sends the now oxygen-filled blood into the main artery of the body (aorta). The aorta sends the blood throughout the body.

Hypoplastic left heart syndrome is characterized by the underdevelopment (hypoplasia) of the chambers on the left side of the heart (i.e., left atrium and ventricle). In addition, the mitral valve, which connects these chambers to each other, is usually abnormally narrow (stenosis) or closed (atresia) and the aortic valve, which connects the heart to the major vessels that lead from the lungs (ascending aorta), may also be narrow or closed. Infants with hypoplastic left heart syndrome also have an abnormally narrow ascending aorta.

Organizations related to Hypoplastic Left Heart Syndrome

American Heart Association
National Center
Dallas TX 75231-4596
Phone #: 214-373-6300
800 #: 800-242-8721
e-mail: [email protected]
Home page: http://www.americanheart.org
Birth Defect Research for Children
930 Woodcock Rd
Orlando FL 32803
Phone #: 407-895-0802
800 #: --
e-mail: [email protected]
Home page: http://www.birthdefects.org
Congenital Heart Anomalies, Support, Education, & Resources
2112 North Wilkins Road
Swanton OH 43558
Phone #: 419-825-5575
800 #: --
e-mail: [email protected]
Home page: http://www.csun.edu/~hcmth011/chaser/chaser-news.html
Congenital Heart Information Network
1561 Clark Dr
Yardley PA 19067
Phone #: 215-493-3068
800 #: --
e-mail: [email protected]
Home page: http://www.tchin.org
Fetal Hope Foundation
9786 S Holland Street
Littelton CO 80127
Phone #: 303-932-0553
800 #: 877-789-4673
e-mail: [email protected]
Home page: http://www.fetalhope.org
Kids With Heart National Association for Children's Heart Disorders, Inc.
1578 Careful Dr
Green Bay WI 54304-2941
Phone #: 920-498-0058
800 #: 800-538-5390
e-mail: [email protected]
Home page: http://www.kidswithheart.org
Little Hearts, Inc.
P.O. Box 171
Cromwell CT 06416
Phone #: 860-635-0006
800 #: 866-435-4673
e-mail: [email protected]
Home page: http://www.littlehearts.org
MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: [email protected]
Home page: http://www.netnet.net/mums/
Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: [email protected]
Home page: http://www.madisonsfoundation.org
NIH/National Heart, Lung and Blood Institute
31 Center Drive MSC 2480
Bethesda MD 20892-2480
Phone #: 301-592-8573
800 #: --
e-mail: [email protected]
Home page: http://www.nhlbi.nih.gov/

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html