Idiopathic Pulmonary Fibrosis / Disease

Diseases & Conditions

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Idiopathic Pulmonary Fibrosis

Synonyms of Idiopathic Pulmonary Fibrosis

Alveolocapillary block
Cryptogenic Fibrosing Alveolitis
Diffuse Fibrosing Alveolitis
Fibrosing Alveolitis
Hamman-Rich Syndrome
Interstitial Diffuse Pulmonary Fibrosis

Disorder Subdivisions

General Discussion
Idiopathic pulmonary fibrosis is an inflammatory lung disorder of unknown origin (idiopathic) characterized by abnormal formation of fibrous tissue (fibrosis) between the tiny air sacs (alveoli) or ducts of the lungs. Coughing and rapid, shallow breathing occur with moderate exercise. The skin may appear slightly bluish (cyanotic) due to lack of circulating oxygen. Complications such as infection, emphysema or heart problems may develop.

Organizations related to Idiopathic Pulmonary Fibrosis

American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Avenue
Eastpointe MI 48021
Phone #: 586-776-3900
800 #: 800-598-4668
e-mail: [email protected]
Home page: http://www.aarda.org/
American Lung Association
61 Broadway, 6th Floor
New York NY 10006
Phone #: 212-315-8700
800 #: 800-586-4872
e-mail: N/A
Home page: http://www.lungusa.org
AutoImmunity Community
None
None None None
Phone #: (91-9) -552-9057
800 #: N/A
e-mail: [email protected]
Home page: http://autoimmunitycommunity.org
Autoimmune Information Network, Inc
PO Box 4121
Brick NJ 08723
Phone #: 732-664-9259
800 #: N/A
e-mail: [email protected]
Home page: http://www.aininc.org
Coalition for Pulmonary Fibrosis
1659 Bramham Lane
San Jose CA 95118
Phone #: 888-222-8541
800 #: 888-222-8541
e-mail: [email protected]
Home page: http://www.coalitionforpf.org
European Society for Immunodeficiencies (ESID)
c/o Dr. Esther de Vries
Hertogenbosch None 5200 ME's
Phone #: +31- 73--6992965
800 #: N/A
e-mail: [email protected]
Home page: http://www.esid.org
MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: [email protected]
Home page: http://www.netnet.net/mums/
NIH/National Heart, Lung and Blood Institute
31 Center Drive MSC 2480
Bethesda MD 20892-2480
Phone #: 301-592-8573
800 #: --
e-mail: [email protected]
Home page: http://www.nhlbi.nih.gov/
Pulmonary Fibrosis Foundation
1332 N. Halsted
Chicago IL 60622
Phone #: 312-587-9272
800 #: N/A
e-mail: [email protected]
Home page: http://www.pulmonaryfibrosis.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html