Diseases & Conditions


Myelodysplastic Syndromes

Synonyms of Myelodysplastic Syndromes
  • Myelodysplasia
  • Pre-leukemia

Disorder Subdivisions

    General Discussion
    Myelodysplastic syndromes (MDS) are a rare group of blood disorders that occur as a result of improper development of blood cells within the bone marrow. The three main types of blood cells (i.e., red blood cells, white blood cells and platelets) are affected. Red blood cells deliver oxygen to the body, white blood cells help fight infections, and platelets assist in clotting to stop blood loss. These improperly developed blood cells fail to develop normally and enter the bloodstream. As a result, individuals with MDS have abnormally low blood cell levels (low blood counts). General symptoms associated with MDS include fatigue, dizziness, weakness, bruising and bleeding, frequent infections, and headaches. In some cases, MDS may progress to life-threatening failure of the bone marrow or develop into an acute leukemia. The exact cause of MDS is unknown. There are no certain environmental risk factors.

    Organizations related to Myelodysplastic Syndromes
    • American Cancer Society, Inc.
      1599 Clifton Road NE
      Atlanta GA 30329
      Phone #: 404-320-3333
      800 #: 800-227-2345
      e-mail: N/A
      Home page: http://www.cancer.org
    • Anemia Institute for Research and Education
      151 Bloor Street West
      Toronto, Ontario None M5S 1S4
      Phone #: 416--96-9-7431
      800 #: 877--99-2-6364
      e-mail: [email protected]
      Home page: http://www.anemiainstitute.org
    • Aplastic Anemia & MDS International Foundation, Inc.
      P.O. Box 310
      Churchton MD 20733
      Phone #: 410-867-0242
      800 #: 800-747-2820
      e-mail: [email protected]
      Home page: http://www.aamds.org
    • Aplastic Anemia & Myelodysplasia Association of Canada
      11181 Yonge Street,Suite 321
      Ontario Intl L4S 1L2
      Phone #: 905-780-0698
      800 #: N/A
      e-mail: [email protected]
      Home page: http://www.aamac.ca
    • Cancer.Net
      American Society of Clinical Oncology
      Alexandria VA 22314
      Phone #: 571-483-1780
      800 #: 888-651-3038
      e-mail: [email protected]
      Home page: http://www.cancer.net/patient
    • Friends of Cancer Research
      2231 Crystal Drive
      Arlington VA 22202
      Phone #: 703-302-1503
      800 #: N/A
      e-mail: [email protected]
      Home page: http://www.focr.org
    • Leukemia & Lymphoma Society
      1311 Mamaroneck Ave
      White Plains NY 10605
      Phone #: 914-949-5213
      800 #: 800-955-4572
      e-mail: [email protected]
      Home page: http://www.LLS.org
    • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
      150 Custer Court
      Green Bay WI 54301-1243
      Phone #: 920-336-5333
      800 #: 877-336-5333
      e-mail: [email protected]
      Home page: http://www.netnet.net/mums/
    • Myeloproliferative Disease Support and Free Daily Email Digest
      2011 Flagler Ave.
      Key West FL 33040
      Phone #: 305-295-4444
      800 #: N/A
      e-mail: [email protected] or [email protected]
      Home page: http://www.MPDSUPPORT.ORG
    • Myeloproliferative Mailing List (MPD-SUPPORT-L)
      3706 North Roosevelt Blvd.
      Key West FL 44030
      Phone #: 305-295-4444
      800 #: --
      e-mail: [email protected]
      Home page: http://www.mpdsupport.org
    • NIH/National Heart, Lung and Blood Institute Information Center
      P.O. Box 30105
      Bethesda MD 20824-0105
      Phone #: 301-592-8573
      800 #: --
      e-mail: [email protected]
      Home page: N/A
    • National Bone Marrow Transplant Link
      20411 W. 12 Mile Rd
      Southfield MI 48076
      Phone #: 248-358-1886
      800 #: 800-546-5268
      e-mail: [email protected]
      Home page: http://www.nbmtlink.org
    • National Cancer Institute
      6116 Executive Blvd, MSC 8322, Room 3036A
      Bethesda MD 20892-8322
      Phone #: 301-435-3848
      800 #: 800-422-6237
      e-mail: N/A
      Home page: http://www.cancer.gov
    • National Marrow Donor Program
      3001 Broadway St. NE
      Minneapolis MN 55413-1753
      Phone #: 612-627-5800
      800 #: 800-627-7692
      e-mail: N/A
      Home page: http://www.marrow.org
    • Patient Registries at Slone: Myeloma & MDS
      Slone Epidemiology Center at Boston University
      Boston MA 02215
      Phone #: 617-734-6006
      800 #: 800-231-3769
      e-mail: [email protected]
      Home page: http://www.bu.edu/prs
    • UCSF Hemophilia Treatment Center
      400 Parnassus Ave.
      San Francisco CA 94143
      Phone #: 415-353-2986
      800 #: N/A
      e-mail: N/A
      Home page: http://www.ucsfhealth.org/adult/medical_services/blood/hemophilia/index.html
    • World Health Organization (WHO) Regional Office for the Americas (AMRO)
      Pan American Health Organization (PAHO)
      Washington DC 20037
      Phone #: 202-974-3000
      800 #: --
      e-mail: [email protected]
      Home page: http://www.who.ch/

    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html