Pierre Robin Sequence / Disease

Diseases & Conditions

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Pierre Robin Sequence

Synonyms of Pierre Robin Sequence

Glossoptosis, Micrognathia, and Cleft Palate
Pierre Robin
Pierre Robin Anomalad
Pierre Robin Complex
Pierre Robin Deformity
Pierre Robin Malformation Sequence
Pierre Robin Syndrome
Pierre Robin Triad
Robin Anomalad
Robin Complex
Robin Syndrome

Disorder Subdivisions

General Discussion
Pierre Robin sequence is characterized by an unusually small lower jaw (micrognathia) and downward displacement of the tongue (glossoptosis). Some infants also have an abnormal opening in the roof of the mouth (cleft palate); both the soft and hard palate can be affected.

Organizations related to Pierre Robin Sequence

Birth Defect Research for Children
930 Woodcock Rd
Orlando FL 32803
Phone #: 407-895-0802
800 #: --
e-mail: [email protected]
Home page: http://www.birthdefects.org
Children's Craniofacial Association
13140 Coit Road
Dallas TX 75240
Phone #: 214-570-9099
800 #: 800-535-3643
e-mail: [email protected]
Home page: http://www.ccakids.com
Congenital Heart Anomalies, Support, Education, & Resources
2112 North Wilkins Road
Swanton OH 43558
Phone #: 419-825-5575
800 #: --
e-mail: [email protected]
Home page: http://www.csun.edu/~hcmth011/chaser/chaser-news.html
FACES: The National Craniofacial Association
P.O. Box 11082
Chattanooga TN 37401
Phone #: 423-266-1632
800 #: 800-332-2373
e-mail: [email protected]
Home page: http://www.faces-cranio.org
Let Them Hear Foundation
1900 University Ave #101
East Palo Alto CA 94303
Phone #: 650-462-3143
800 #: 877-735-2929
e-mail: [email protected]
Home page: http://www.letthemhear.org
MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: [email protected]
Home page: http://www.netnet.net/mums/
Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: [email protected]
Home page: http://www.madisonsfoundation.org
Pierre Robin Network
3604 Biscayne
Quincy IL 62305
Phone #: 217-224-0698
800 #: --
e-mail: [email protected]
Home page: http://www.pierrerobin.org
Prescription Parents
Prescription Parent, Inc.
Needham MA 02492
Phone #: 617-499-1936
800 #: --
e-mail: [email protected]
Home page: http://www.prescriptionparents.com
Wide Smiles
P.O. Box 5153
Stockton CA 95205-0153
Phone #: 209-942-2812
800 #: --
e-mail: [email protected]
Home page: http://www.widesmiles.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html