Disorder Subdivisions
1364 Welsh Road G2
North Wales PA 19454
Phone #: 215-619-0670
800 #: 800-545-3286
e-mail: [email protected]
Home page: http://www.scalyskin.org
New York University Medical Center
New York NY 10016
Phone #: 212-340-5245
800 #: --
e-mail: N/A
Home page: N/A
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: [email protected]
Home page: http://www.netnet.net/mums/
1 AMS Circle
Bethesda MD 20892-3675
Phone #: 301-495-4484
800 #: 877-226-4267
e-mail: [email protected]
Home page: http://www.niams.nih.gov/Health_Info
Web Site on the Internet
None None None
Phone #: --
800 #: --
e-mail: [email protected]
Home page: http://www.prp-support.org
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html
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