Progressive Supranuclear Palsy / Disease

Diseases & Conditions

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Progressive Supranuclear Palsy

Synonyms of Progressive Supranuclear Palsy

Nuchal Dystonia Dementia Syndrome
PSP
Steele-Richardson-Olszewski Syndrome

Disorder Subdivisions

General Discussion
Progressive supranuclear palsy (PSP) is a rare degenerative neurological disorder characterized by loss of balance and impaired walking; loss of control of voluntary eye movement, especially in the downward direction; abnormal muscle tone (rigidity); speech difficulties (dysarthria); and problems related to swallowing and eating (dysphagia). Affected individuals frequently experience personality changes and cognitive impairment. Symptoms typically begin in one?s 60s, but can start as early as the 40s. The exact cause of progressive supranuclear palsy is unknown. PSP is often misdiagnosed as Parkinson?s disease, Alzheimer's disease, or other neurodegenerative disorders.

Organizations related to Progressive Supranuclear Palsy

CurePSP: Society for Progressive Supranuclear Palsy
Executive Plaza III Suite 906
Hunt Valley MD 21031
Phone #: 410-785-7004
800 #: 800-457-4777
e-mail: [email protected]
Home page: http://www.psp.org
National Institute of Neurological Disorders and Stroke (NINDS)
31 Center Drive
Bethesda MD 20892-2540
Phone #: 301-496-5751
800 #: 800-352-9424
e-mail: [email protected]
Home page: http://www.ninds.nih.gov/
National Parkinson Foundation, Inc.
1501 NW 9th Ave/Bob Hope Road
Miami FL 33136-1494
Phone #: 305-243-6666
800 #: 800-327-4545
e-mail: [email protected]
Home page: http://www.parkinson.org
Progressive Supranuclear Palsy (PSP Europe) Association
The Old Rectory
Northamptonshire Intl NN12 8SQ
Phone #: 44 -132-7 860299
800 #: --
e-mail: [email protected]
Home page: http://www.pspeur.org
UCSF Memory and Aging Center
350 Parnassus Avenue
San Francisco CA 94117
Phone #: 415-476-6800
800 #: N/A
e-mail: N/A
Home page: http://memory.ucsf.edu
WE MOVE (Worldwide Education and Awareness for Movement Disorders)
204 West 84th Street
New York NY 10024
Phone #: 212-875-8312
800 #: N/A
e-mail: [email protected]
Home page: http://www.wemove.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html