Disorder Subdivisions
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: [email protected]
Home page: http://www.netnet.net/mums/
3600 Blue Ridge
Grandview MO 64030
Phone #: 816-761-7080
800 #: N/A
e-mail: [email protected]
Home page: http://www.mdsupport.org
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: [email protected]
Home page: http://www.madisonsfoundation.org
1 AMS Circle
Bethesda MD 20892-3675
Phone #: 301-495-4484
800 #: 877-226-4267
e-mail: [email protected]
Home page: http://www.niams.nih.gov/Health_Info
Building 31 Rm 6A32
Bethesda MD 20892-2510
Phone #: 301-496-5248
800 #: --
e-mail: [email protected]
Home page: http://www.nei.nih.gov/
P.O. Box 30105
Bethesda MD 20824-0105
Phone #: 301-592-8573
800 #: --
e-mail: [email protected]
Home page: N/A
8764 Manchester Road
St Louis MO 63144-2724
Phone #: 314-962-0100
800 #: --
e-mail: [email protected]
Home page: http://www.napxe.org
4301 Connecticut Ave NW
Washington DC 20008-2304
Phone #: 202-362-9599
800 #: --
e-mail: [email protected]
Home page: http://www.pxe.org
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html
İçerik bulunamadı.
İçerik bulunamadı.