Pulmonary Alveolar Proteinosis / Disease

Diseases & Conditions

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Pulmonary Alveolar Proteinosis

Synonyms of Pulmonary Alveolar Proteinosis

Alveolar Lipoproteinosis
PAP
Phospholipidosis

Disorder Subdivisions

Congenital Pulmonary Alveolar Proteinosis
Idiopathic Pulmonary Alveolar Proteinosis
Secondary Pulmonary Alveolar Proteinosis

General Discussion
Pulmonary alveolar proteinosis (PAP) is a rare lung disorder characterized by the accumulation of grainy material consisting mostly of protein and fat (lipoproteinaceous material) in the air sacs of the lungs (alveoli). Breathing often becomes progressively difficult. The disorder occurs in different forms, ranging from mild to severe, and can affect individuals of any age. PAP may occur secondary to many environmental exposures or underlying diseases. However, most cases of PAP occur for no known reason (idiopathic or primary PAP). An extremely rare form of PAP occurs in newborns (congenital PAP).

Organizations related to Pulmonary Alveolar Proteinosis

American Lung Association
61 Broadway, 6th Floor
New York NY 10006
Phone #: 212-315-8700
800 #: 800-586-4872
e-mail: N/A
Home page: http://www.lungusa.org
British Paediatric Orphan Lung Disease (BPOLD)
None
None None None
Phone #: N/A
800 #: N/A
e-mail: N/A
Home page: http://www.bpold.co.uk
NIH/National Heart, Lung and Blood Institute Information Center
P.O. Box 30105
Bethesda MD 20824-0105
Phone #: 301-592-8573
800 #: --
e-mail: [email protected]
Home page: N/A

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html