Synonyms of Recurrent Respiratory Papillomatosis- Juvenile Laryngeal Papilloma
- Laryngeal Papilloma
- Respiratory Papillomatosis
Disorder Subdivisions
- Adult-Onset Respiratory Papillomatosis
- Juvenile Respiratory Papillomatosis
General DiscussionRecurrent Respiratory Papillomatosis is a rare viral disease characterized by multiple benign growths (papillomas) in the middle and lower respiratory tract. Symptoms usually begin with hoarseness and/or a change in voice. The growths may be surgically removed, but frequently recur and may require additional surgery. Affected individuals may experience long periods without recurrence (remission), and/or the disease may disappear completely. Children under five years of age are most commonly affected, although adults represent about one-third of all documented cases. People with Recurrent Respiratory Papillomatosis may have difficulty breathing (dyspnea) and/or experience other life-threatening complications if the papillomas block the airway.
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Organizations related to Recurrent Respiratory Papillomatosis- British Paediatric Orphan Lung Disease (BPOLD)
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None None None
Phone #: N/A
800 #: N/A
e-mail: N/A
Home page: http://www.bpold.co.uk
- NIH/National Heart, Lung and Blood Institute Information Center
P.O. Box 30105
Bethesda MD 20824-0105
Phone #: 301-592-8573
800 #: --
e-mail: [email protected]
Home page: N/A
- NIH/National Institute of Allergy and Infectious Diseases
6610 Rockledge Drive
Bethesda MD 20892-6612
Phone #: 301-496-5717
800 #: --
e-mail: N/A
Home page: http://www.niaid.nih.gov/
- Recurrent Respiratory Papillomatosis Foundation
P.O. Box 6643
Lawrenceville NJ 08648-0643
Phone #: 609-530-1443
800 #: --
e-mail: [email protected]
Home page: http://www.rrpf.org
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html