Disorder Subdivisions
1155 15th Street
Washington DC 20005
Phone #: 202-467-5081
800 #: 800-424-8666
e-mail: N/A
Home page: http://www.acb.org
11 Penn Plaza
New York NY 10001
Phone #: 212-502-7600
800 #: 800-232-5463
e-mail: [email protected]
Home page: http://www.afb.org
National Center
Dallas TX 75231-4596
Phone #: 214-373-6300
800 #: 800-242-8721
e-mail: [email protected]
Home page: http://www.americanheart.org
1155 15th St. NW
Washington DC 20005
Phone #: 202-465-5081
800 #: --
e-mail: [email protected]
Home page: http://www.acb.org/
Building 31 Rm 6A32
Bethesda MD 20892-2510
Phone #: 301-496-5248
800 #: --
e-mail: [email protected]
Home page: http://www.nei.nih.gov/
22 West 21st Street
New York NY 10010
Phone #: 212-889-3141
800 #: --
e-mail: [email protected]
Home page: http://www.navh.org
910 Skokie Boulevard
Northbrook IL 60062
Phone #: 847-564-4652
800 #: 800-621-2258
e-mail: [email protected]
Home page: http://www.nerf.org
20 Staniford Street
Boston MA 02114-2500
Phone #: 617-912-0100
800 #: --
e-mail: [email protected]
Home page: http://www.theschepens.org/
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html
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