Romano Ward Syndrome / Disease

Diseases & Conditions

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Romano Ward Syndrome

Synonyms of Romano Ward Syndrome

Autosomal Dominant Long QT Syndrome
Long QT Syndrome Type 1
Long QT Syndrome without Deafness
LQTS1
Romano-Ward Long QT Syndrome
RWS
Ward-Romano Syndrome

Disorder Subdivisions

General Discussion
Romano-Ward syndrome is an inherited heart (cardiac) disorder characterized by abnormalities affecting the electrical system of the heart. The severity of Romano-Ward syndrome varies greatly from case to case. Some individuals may have no apparent symptoms (asymptomatic); others may develop abnormally increased heartbeats (tachyarrhythmias) resulting in episodes of unconsciousness (syncope), cardiac arrest, and potentially sudden death. Romano-Ward syndrome is inherited as an autosomal dominant trait.
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Organizations related to Romano Ward Syndrome

American Heart Association
National Center
Dallas TX 75231-4596
Phone #: 214-373-6300
800 #: 800-242-8721
e-mail: [email protected]
Home page: http://www.americanheart.org
European Long QT Syndrome Information Center
Web Site on the Internet
Nidau Intl 2560
Phone #: 004-179-4741535
800 #: --
e-mail: [email protected]
Home page: http://www.qtsyndrome.ch
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-519-3194
800 #: 888-205-2311
e-mail: [email protected]
Home page: http://www.genome.gov/10000409
HOPE (The Heart of Pediatric Electrophysiology)
PO Box 519
Park Ridge NJ 07565
Phone #: 201-505-9383
800 #: 877-394-4673
e-mail: [email protected], [email protected]
Home page: http://www.heartbeatsofhope.org;
International Long QT Syndrome Registry
P.O. Box 653
Rochester NY 14642-8653
Phone #: 585-276-0016
800 #: --
e-mail: N/A
Home page: N/A
MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: [email protected]
Home page: http://www.netnet.net/mums/
Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: [email protected]
Home page: http://www.madisonsfoundation.org
NIH/National Heart, Lung and Blood Institute Information Center
P.O. Box 30105
Bethesda MD 20824-0105
Phone #: 301-592-8573
800 #: --
e-mail: [email protected]
Home page: N/A
Sudden Arrhythmia Death Syndromes Foundation
508 E South Temple #20
Salt Lake City UT 84102
Phone #: 801-531-0937
800 #: 800-786-7723
e-mail: [email protected]
Home page: http://www.sads.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html