Scleroderma / Disease

Diseases & Conditions

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Scleroderma

Synonyms of Scleroderma

Progressive Systemic Sclerosis
PSS
Sclerosis, Familial Progressive Systemic
Systemic Sclerosis

Disorder Subdivisions

CREST Syndrome
Linear Scleroderma
Morphea

General Discussion
Scleroderma is a rare autoimmune connective tissue disorder characterized by abnormal thickening of the skin. Connective tissue is composed of collagen, which supports and binds other body tissues. There are several types of scleroderma. Some types affect certain, specific parts of the body, while other types can affect the whole body and internal organs (systemic). Scleroderma is also known as progressive systemic sclerosis. The exact cause of scleroderma is unknown.

Organizations related to Scleroderma

American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Avenue
Eastpointe MI 48021
Phone #: 586-776-3900
800 #: 800-598-4668
e-mail: [email protected]
Home page: http://www.aarda.org/
AutoImmunity Community
None
None None None
Phone #: (91-9) -552-9057
800 #: N/A
e-mail: [email protected]
Home page: http://autoimmunitycommunity.org
Autoimmune Information Network, Inc
PO Box 4121
Brick NJ 08723
Phone #: 732-664-9259
800 #: N/A
e-mail: [email protected]
Home page: http://www.aininc.org
European Society for Immunodeficiencies (ESID)
c/o Dr. Esther de Vries
Hertogenbosch None 5200 ME's
Phone #: +31- 73--6992965
800 #: N/A
e-mail: [email protected]
Home page: http://www.esid.org
International Scleroderma Network
7455 France Ave So #266
Edina MN 55435
Phone #: 952-831-3091
800 #: 800-564-7099
e-mail: [email protected]
Home page: http://www.sclero.org
Juvenile Scleroderma Network, Inc.
1204 W. 13th St
San Pedro CA 90731
Phone #: 310-519-9511
800 #: 866-338-5892
e-mail: [email protected]
Home page: http://www.jsdn.org
Lupus Society of Alberta
Suite 200, 1301 - 8 St. SW
Calgary, AB None T2R 1B7
Phone #: 403--22-8-7956
800 #: 888--24-2-9182
e-mail: [email protected]
Home page: www.lupus.ab.ca
MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: [email protected]
Home page: http://www.netnet.net/mums/
Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: [email protected]
Home page: http://www.madisonsfoundation.org
NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1 AMS Circle
Bethesda MD 20892-3675
Phone #: 301-495-4484
800 #: 877-226-4267
e-mail: [email protected]
Home page: http://www.niams.nih.gov/Health_Info
National Registry for Childhood Onset Scleroderma
726 South BST, 3500 Terrace St.
Pittsburgh PA 15261
Phone #: 412-383-8674
800 #: 800-603-8960
e-mail: [email protected]
Home page: http://www.arthritis.pitt.edu
Parry-Romberg Syndrome Resource, Inc.
4815 Crystal River Ct.
Indianapolis IN 46240
Phone #: 317-566-8149
800 #: N/A
e-mail: [email protected]
Home page: http://www.prsresource.com
Scleroderma Foundation
300 Rosewood Drive Byfield, MA 01922
Danvers MA 01923
Phone #: 978-463-5843
800 #: 800-722-4673
e-mail: [email protected]
Home page: http://www.scleroderma.org
Scleroderma Research Foundation
220 Montgomery Street
San Francisco CA 94104
Phone #: 415-834-9444
800 #: 800-441-2873
e-mail: [email protected]
Home page: http://www.srfcure.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html