Sturge Weber Syndrome / Disease

Diseases & Conditions

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Sturge Weber Syndrome

Synonyms of Sturge Weber Syndrome

Dimitri Disease
Encephalofacial Angiomatosis
Encephalotrigeminal Angiomatosis
Leptomeningeal Angiomatosis
Meningeal Capillary Angiomatosis
Sturge-Kalischer-Weber Syndrome
Sturge-Weber Phakomatosis
SWS

Disorder Subdivisions

General Discussion
Sturge-Weber syndrome is composed of three major symptoms. Excessive blood vessel growths (leptomeningeal angiomas) are accompanied by accumulations of calcium inside the brain, and seizures. Facial birth marks (nevus flammeus) appear usually on one side of the face. Angiomas similar to those found in the brain can develop inside the eye, often with secondary glaucoma. Hormone abnormalities have also been found to occur equally in males and females.

Organizations related to Sturge Weber Syndrome

Enjolras, Odile, M.D.
Department of Dermatology
Paris None None
Phone #: --
800 #: --
e-mail: N/A
Home page: N/A
Hemispherectomy Foundation
P.O. Box 1239
Aledo TX 76008
Phone #: 817-307-9880
800 #: N/A
e-mail: [email protected]
Home page: http://www.hemifoundation.org
MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: [email protected]
Home page: http://www.netnet.net/mums/
Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: [email protected]
Home page: http://www.madisonsfoundation.org
National Institute of Neurological Disorders and Stroke (NINDS)
31 Center Drive
Bethesda MD 20892-2540
Phone #: 301-496-5751
800 #: 800-352-9424
e-mail: [email protected]
Home page: http://www.ninds.nih.gov/
National Organization of Vascular Anomalies
PO Box 0358
Findlay OH 45840-0358
Phone #: N/A
800 #: N/A
e-mail: [email protected]
Home page: http://www.novanews.org
Sturge-Weber Foundation
PO Box 418
Mt. Freedom NJ 07970
Phone #: 973-895-4445
800 #: 800-627-5482
e-mail: [email protected]
Home page: http://www.sturge-weber.org
The Arc (a national organization on mental retardation)
1010 Wayne Ave
Silver Spring MD 20910
Phone #: 301-565-3842
800 #: 800-433-5255
e-mail: [email protected]
Home page: http://www.thearc.org/
Vascular Birthmarks Foundation
P.O. Box 106
Latham NY 12110
Phone #: N/A
800 #: 877-823-4646
e-mail: [email protected]
Home page: http://www.birthmark.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html