Tethered Spinal Cord Syndrome / Disease

Diseases & Conditions

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Tethered Spinal Cord Syndrome

Synonyms of Tethered Spinal Cord Syndrome

Congenital Tethered Cervical Spinal Cord Syndrome
Occult Spinal Dysraphism Sequence
Tethered Cervical Spinal Cord Syndrome
Tethered Cord Malformation Sequence
Tethered Cord Syndrome

Disorder Subdivisions

General Discussion
Tethered Spinal Cord Syndrome is a disorder characterized by progressive neurological deterioration that results from compression of the lowermost bundle of nerves of the spinal cord (cauda equina). It is most commonly associated with a defective closing of the neural tube (precursor of the spinal column) during embryonic development (Spina Bifida).

Organizations related to Tethered Spinal Cord Syndrome

American Association of Neurological Surgeons
5550 Meadowbrook Drive
Rolling Meadows IL 60008-3852
Phone #: 847-378-0500
800 #: 888-566-2267
e-mail: [email protected]
Home page: http://www.NeurosurgeryToday.org
Birth Defect Research for Children
930 Woodcock Rd
Orlando FL 32803
Phone #: 407-895-0802
800 #: --
e-mail: [email protected]
Home page: http://www.birthdefects.org
International Federation for Spina Bifida and Hydrocephalus
Attn. Els De Clercq
Brussels None B1000
Phone #: --
800 #: --
e-mail: [email protected]
Home page: http://www.ifglobal.org
MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: [email protected]
Home page: http://www.netnet.net/mums/
Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: [email protected]
Home page: http://www.madisonsfoundation.org
National Institute of Neurological Disorders and Stroke (NINDS)
31 Center Drive
Bethesda MD 20892-2540
Phone #: 301-496-5751
800 #: 800-352-9424
e-mail: [email protected]
Home page: http://www.ninds.nih.gov/
Spina Bifida Association of America
4590 MacArthur Boulevard NW
Washington DC 20007-4226
Phone #: 202-944-3285
800 #: 800-621-3141
e-mail: [email protected]
Home page: http://www.sbaa.org
Spina Bifida and Hydrocephalus Association of Canada
#977-167 Lombard Avenue
Winnipeg, Manitoba None R3B 0V3
Phone #: 204--92-5-3650
800 #: 800--56-5-9488
e-mail: [email protected]
Home page: http://www.sbhac.ca

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html