Disorder Subdivisions
3417 Volta Place, NW
Washington D.C. 20007-2778
Phone #: 202-337-5220
800 #: 866-337-5220
e-mail: [email protected]
Home page: http://www.agbell.org
11730 Plaza America
Reston VA 20190
Phone #: 703-790-8466
800 #: 800-222-2336
e-mail: [email protected]
Home page: http://www.audiology.org
PO Box 3355
Gettysburg PA 17325
Phone #: 800-942-6084
800 #: 800-942-2732
e-mail: [email protected]
Home page: http://www.deafchildren.org
1561 Clark Dr
Yardley PA 19067
Phone #: 215-493-3068
800 #: --
e-mail: [email protected]
Home page: http://www.tchin.org
PO Box 8126
Gaithersburg MD 20898-8126
Phone #: 301-519-3194
800 #: 888-205-2311
e-mail: [email protected]
Home page: http://www.genome.gov/10000409
1578 Careful Dr
Green Bay WI 54304-2941
Phone #: 920-498-0058
800 #: 800-538-5390
e-mail: [email protected]
Home page: http://www.kidswithheart.org
1900 University Ave #101
East Palo Alto CA 94303
Phone #: 650-462-3143
800 #: 877-735-2929
e-mail: [email protected]
Home page: http://www.letthemhear.org
P.O. Box 171
Cromwell CT 06416
Phone #: 860-635-0006
800 #: 866-435-4673
e-mail: [email protected]
Home page: http://www.littlehearts.org
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: [email protected]
Home page: http://www.netnet.net/mums/
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: [email protected]
Home page: http://www.madisonsfoundation.org
Building 31 Rm 6A32
Bethesda MD 20892-2510
Phone #: 301-496-5248
800 #: --
e-mail: [email protected]
Home page: http://www.nei.nih.gov/
814 Thayer Avenue
Silver Spring MD 20910-4500
Phone #: 301-587-1788
800 #: --
e-mail: [email protected]
Home page: http://www.nad.org
None
None None None
Phone #: N/A
800 #: N/A
e-mail: N/A
Home page: http://health.groups.yahoo.com/group/Townes-Brocks-Syndrome/
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html
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