Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Choroideremia


Synonyms of Choroideremia
  • Choroidal Sclerosis
  • Progressive Choroidal Atrophy
  • Progressive Tapetochoroidal Dystrophy
  • TCD

Disorder Subdivisions



    General Discussion
    Choroideremia is a genetic disorder of sight that usually affects males. Female carriers may have mild symptoms without loss of vision. Major symptoms include a progressive loss of the peripheral field of vision and night blindness. Night blindness is usually the first noticeable symptom, usually occurring during childhood.
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    Organizations related to Choroideremia
    • American Council of the Blind, Inc.
      1155 15th Street
      Washington DC 20005
      Phone #: 202-467-5081
      800 #: 800-424-8666
      e-mail: N/A
      Home page: http://www.acb.org
    • American Foundation for the Blind
      11 Penn Plaza
      New York NY 10001
      Phone #: 212-502-7600
      800 #: 800-232-5463
      e-mail: afbinfo@afb.org
      Home page: http://www.afb.org
    • Blind Children's Fund
      311 W. Broadway
      Mt. Pleasant MI 48858
      Phone #: 989-779-9966
      800 #: --
      e-mail: bcf@blindchildrensfund.org
      Home page: http://www.blindchildrensfund.org
    • Choroideremia Research Foundation, Inc.
      23 East Brundreth St
      Springfield MA 01109
      Phone #: 413-781-2274
      800 #: --
      e-mail: info@choroideremia.org
      Home page: http://www.choroideremia.org
    • Council of Families with Visual Impairment
      1155 15th St. NW
      Washington DC 20005
      Phone #: 202-465-5081
      800 #: --
      e-mail: info@acb.org
      Home page: http://www.acb.org/
    • EyeCare Foundation
      115 East 61st Street
      New York NY 10021
      Phone #: 212-832-7297
      800 #: --
      e-mail: contactus@eyecarefoundation.org
      Home page: http://www.eyecarefoundation.org
    • Foundation Fighting Blindness (Canada)
      60 St. Clair Ave East
      Toronto, Ontario None M4T 1N5
      Phone #: 416--36-0-4200
      800 #: 800--46-1-3331
      e-mail: info@ffb.ca
      Home page: http://www.ffb.ca
    • Macular Degeneration Support, Inc.
      3600 Blue Ridge
      Grandview MO 64030
      Phone #: 816-761-7080
      800 #: N/A
      e-mail: director@mdsupport.org
      Home page: http://www.mdsupport.org
    • NIH/National Eye Institute
      Building 31 Rm 6A32
      Bethesda MD 20892-2510
      Phone #: 301-496-5248
      800 #: --
      e-mail: 2020@nei.nih.gov
      Home page: http://www.nei.nih.gov/
    • National Association for Parents of Children with Visual Impairments (NAPVI)
      P.O. Box 317
      Watertown MA 02472
      Phone #: 617-972-7441
      800 #: 800-562-6265
      e-mail: napvi@perkins.org
      Home page: http://www.napvi.org
    • National Association for Visually Handicapped
      22 West 21st Street
      New York NY 10010
      Phone #: 212-889-3141
      800 #: --
      e-mail: staff@navh.org
      Home page: http://www.navh.org
    • National Federation of the Blind
      1800 Johnson Street
      Baltimore MD 21230
      Phone #: 410-659-9314
      800 #: --
      e-mail: nfb@nfb.org
      Home page: http://www.nfb.org



    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html