Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Chronic Fatigue Syndrome/Myalgic Encephalomyelitis


Synonyms of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis
  • Akureyri Disease
  • Benign Myalgic Encephalomyelitis
  • CFS
  • Epidemic Myalgic Encephalomyelitis
  • Epidemic Neuromyasthenia
  • Iceland Disease
  • ME
  • ME
  • Raphe Nucleus Encephalopathy
  • Royal Free Disease
  • Tapanui Flu

Disorder Subdivisions



    General Discussion
    Until the late 1980s, myalgic encephalomyelitis was thought to be a distinct, infectious disorder affecting the central, peripheral and autonomic nervous systems and the muscles. Its major symptom was fatigue to the point of extended periods of exhaustion. A group of experts studying the Epstein-Barr virus first published strict criteria for the symptoms and physical signs of chronic fatigue syndrome in 1988. This case definition was further refined in 1994.

    The Fact Sheet for CFS published by the National Institutes of Allergy and Infectious Diseases of the National Institutes of Health states that [T]oday, CFS is also known as myalgic encephalomyelitis, postviral fatigue syndrome, and chronic fatigue and immune dysfunction syndrome. ME/CFS is now recognized as part of a range of illnesses that have fatigue as a major symptom.

    ME/CFS is not rare. The CDC estimates that there are as many as 500,000 persons in the United States who have CFS-like symptoms. However, the disorder remains debilitating, complex and mysterious in origin, natural history, understanding and treatment.

    Organizations related to Chronic Fatigue Syndrome/Myalgic Encephalomyelitis
    • CF Alliance
      P.O. Box 9204
      Bardonia NY 10954
      Phone #: 845-548-0313
      800 #: --
      e-mail: CF_ALLIANCE@yahoo.com
      Home page: http://cf-alliance.tripod.com
    • CFIDS Association of America, Inc.
      PO Box 220398
      Charlotte NC 28222-0398
      Phone #: 704-364-0466
      800 #: 800-442-3437
      e-mail: cfids@cfids.org
      Home page: http://www.cfids.org
    • Centers for Disease Control and Prevention
      1600 Clifton Road NE
      Atlanta GA 30333
      Phone #: 404-639-3534
      800 #: 800-311-3435
      e-mail: http://www.cdc.gov/netinfo.htm
      Home page: http://www.cdc.gov/
    • MAME, Inc. (Mothers Against Myalgic Encephalomyelitis)
      1 Orne Square
      Salem MA 01970
      Phone #: 978-744-8293
      800 #: --
      e-mail: MAME@mame-net.org
      Home page: http://www.mame-net.org
    • ME Association
      4 Top Angel
      Buckingham None MK18 1TH
      Phone #: 44 -(0)- 1280 821602
      800 #: N/A
      e-mail: meconnection@meassociation.org.uk
      Home page: http://www.meassociation.org.uk
    • Myalgic Encephalopathy Association
      The ME Association
      Buchinghamshire Intl MK18 1TH
      Phone #: 440-871-2227824
      800 #: --
      e-mail: gill.briody@meassociation.org.uk
      Home page: http://www.meassociation.org.uk
    • NIH/National Institute of Allergy and Infectious Diseases
      6610 Rockledge Drive
      Bethesda MD 20892-6612
      Phone #: 301-496-5717
      800 #: --
      e-mail: N/A
      Home page: http://www.niaid.nih.gov/
    • National CFIDS Foundation, Inc.
      103 Aletha Rd
      Needham MA 02492-3931
      Phone #: 781-449-3535
      800 #: --
      e-mail: gailronda@aol.com
      Home page: http://www.ncf-net.org
    • National Chronic Fatigue Syndrome & Fibromyalgia Association
      P.O. Box 18426
      Kansas City MO 64133
      Phone #: 816-737-1343
      800 #: N/A
      e-mail: information@ncfsfa.org
      Home page: http://www.ncfsfa.org



    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html