Dysplasia, Fibrous / Disease

Diseases & Conditions

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Dysplasia, Fibrous

Synonyms of Dysplasia, Fibrous

Disorder Subdivisions

Monostotic Fibrous Dysplasia; Jaffe-Lichenstein Disease
Polyostotic Fibrous Dysplasia

General Discussion
Fibrous dysplasia is a term that refers to either a group of chronic conditions featuring cystic bone growth that may arise from abnormal bone development or to a disease of bone marrow (medullary bone) characterized by benign cysts. Fibrous dysplasia is characterized by uneven growth, pain, brittleness, and deformity of the affected bones. This disorder may involve a single bone (monostotic fibrous dysplasia or Jaffe-Lichtenstein disease) or may affect multiple bones (polyostotic fibrous dysplasia). Fibrous dysplasia is usually evident during childhood, and the bone lesions usually stop developing at puberty. These lesions may be painful, deforming and widespread. The bones most often affected are the ribs, skull, facial bones, thigh bone (femur), shin bone (tibia), upper arm (humerous), and pelvis. Occasionally, the bones in the spine (vertebrae) are affected. Some, but not all, affected individuals experience repeated bone fractures. The exact cause of fibrous dysplasia is not known.
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Organizations related to Dysplasia, Fibrous

International Center for Skeletal Dysplasia
Saint Joseph's Hospital
Towson MD 21204
Phone #: 410-337-1250
800 #: --
e-mail: N/A
Home page: N/A
MAGIC Foundation for Children's Growth
6645 W. North Avenue
Oak Park IL 60302
Phone #: 708-383-0808
800 #: 800-362-4423
e-mail: mary@magicfoundation.org
Home page: http://www.magicfoundation.org
MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: getinfo@madisonsfoundation.org
Home page: http://www.madisonsfoundation.org
NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1 AMS Circle
Bethesda MD 20892-3675
Phone #: 301-495-4484
800 #: 877-226-4267
e-mail: NIAMSinfo@mail.nih.gov
Home page: http://www.niams.nih.gov/Health_Info
NIH/Osteoporosis and Related Bone Diseases - National Resource Center
2 AMS Circle
Bethesda MD 20892-3676
Phone #: 202-223-0344
800 #: 800-624-2663
e-mail: niamsboneinfo@mail.nih.gov
Home page: http://www.niams.nih.gov/Health_Info/Bone/
Paget Foundation for Paget's Disease of Bone and Related Disorders
120 Wall Street
New York NY 10005
Phone #: 212-509-5335
800 #: 800-237-2438
e-mail: pagetfdn@aol.com
Home page: http://www.paget.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html