Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Dysplasia, Fibrous


Synonyms of Dysplasia, Fibrous

    Disorder Subdivisions

    • Monostotic Fibrous Dysplasia; Jaffe-Lichenstein Disease
    • Polyostotic Fibrous Dysplasia


    General Discussion
    Fibrous dysplasia is a term that refers to either a group of chronic conditions featuring cystic bone growth that may arise from abnormal bone development or to a disease of bone marrow (medullary bone) characterized by benign cysts. Fibrous dysplasia is characterized by uneven growth, pain, brittleness, and deformity of the affected bones. This disorder may involve a single bone (monostotic fibrous dysplasia or Jaffe-Lichtenstein disease) or may affect multiple bones (polyostotic fibrous dysplasia). Fibrous dysplasia is usually evident during childhood, and the bone lesions usually stop developing at puberty. These lesions may be painful, deforming and widespread. The bones most often affected are the ribs, skull, facial bones, thigh bone (femur), shin bone (tibia), upper arm (humerous), and pelvis. Occasionally, the bones in the spine (vertebrae) are affected. Some, but not all, affected individuals experience repeated bone fractures. The exact cause of fibrous dysplasia is not known.
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    Organizations related to Dysplasia, Fibrous
    • International Center for Skeletal Dysplasia
      Saint Joseph's Hospital
      Towson MD 21204
      Phone #: 410-337-1250
      800 #: --
      e-mail: N/A
      Home page: N/A
    • MAGIC Foundation for Children's Growth
      6645 W. North Avenue
      Oak Park IL 60302
      Phone #: 708-383-0808
      800 #: 800-362-4423
      e-mail: mary@magicfoundation.org
      Home page: http://www.magicfoundation.org
    • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
      150 Custer Court
      Green Bay WI 54301-1243
      Phone #: 920-336-5333
      800 #: 877-336-5333
      e-mail: mums@netnet.net
      Home page: http://www.netnet.net/mums/
    • Madisons Foundation
      PO Box 241956
      Los Angeles CA 90024
      Phone #: 310-264-0826
      800 #: N/A
      e-mail: getinfo@madisonsfoundation.org
      Home page: http://www.madisonsfoundation.org
    • NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
      1 AMS Circle
      Bethesda MD 20892-3675
      Phone #: 301-495-4484
      800 #: 877-226-4267
      e-mail: NIAMSinfo@mail.nih.gov
      Home page: http://www.niams.nih.gov/Health_Info
    • NIH/Osteoporosis and Related Bone Diseases - National Resource Center
      2 AMS Circle
      Bethesda MD 20892-3676
      Phone #: 202-223-0344
      800 #: 800-624-2663
      e-mail: niamsboneinfo@mail.nih.gov
      Home page: http://www.niams.nih.gov/Health_Info/Bone/
    • Paget Foundation for Paget's Disease of Bone and Related Disorders
      120 Wall Street
      New York NY 10005
      Phone #: 212-509-5335
      800 #: 800-237-2438
      e-mail: pagetfdn@aol.com
      Home page: http://www.paget.org



    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html