Disorder Subdivisions
DEBRA House
Berkshire None RG45 6LS
Phone #: +44- 13-44 771961
800 #: --
e-mail: admin@debra.org.uk
Home page: http://www.debra.org.uk
16 East 41st Street
New York NY 10017
Phone #: 212-868-1573
800 #: 866-332-7276
e-mail: staff@debra.org
Home page: http://www.debra.org
130 Sandringham Rd., Piedmont, CA 94611 or
None None None
Phone #: 510--53-0-9600/310-854-0957
800 #: --
e-mail: ebmrf@comcast.net
Home page: http://www.ebkids.org
16613 Milan De Avila
Tampa FL 33613
Phone #: 813-325-1955
800 #: N/A
e-mail: silvia@ebanusa.org
Home page: http://www.ebanusa.org
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: getinfo@madisonsfoundation.org
Home page: http://www.madisonsfoundation.org
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html
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