Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Familial Adenomatous Polyposis


Synonyms of Familial Adenomatous Polyposis
  • Adenomatous polyposis of the colon (APC)
  • Familial Multiple Polyposis
  • FAP
  • Hereditary Polyposis Coli
  • Multiple Polyposis of the Colon

Disorder Subdivisions

  • attenuated FAP
  • familial adenomatous polyposis
  • Gardner Syndrome
  • Turcot Syndrome


General Discussion
Familial adenomatous polyposis (FAP) is a rare inherited cancer predisposition syndrome characterized by hundreds to thousands of precancerous colorectal polyps (adenomatous polyps). If left untreated, affected individuals inevitably develop cancer of the colon and/or rectum. FAP is inherited in an autosomal dominant manner and caused by abnormalities (mutations) in the APC gene. Mutations in the APC gene cause a group of polyposis conditions that have overlapping features: familial adenomatous polyposis, Gardner syndrome, Turcot syndrome and attenuated FAP.
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Organizations related to Familial Adenomatous Polyposis
  • American Cancer Society, Inc.
    1599 Clifton Road NE
    Atlanta GA 30329
    Phone #: 404-320-3333
    800 #: 800-227-2345
    e-mail: N/A
    Home page: http://www.cancer.org
  • CORE
    3 St. Andrews Place
    London None NW1 4LB
    Phone #: 020- 74-86 0341
    800 #: N/A
    e-mail: info@corecharity.org.uk
    Home page: http://www.corecharity.org.uk
  • Cancer.Net
    American Society of Clinical Oncology
    Alexandria VA 22314
    Phone #: 571-483-1780
    800 #: 888-651-3038
    e-mail: contactus@cancer.net
    Home page: http://www.cancer.net/patient
  • Delaware Cancer Registry
    2055 Limestone Rd
    Wilmington DE 19808
    Phone #: 302-995-8605
    800 #: --
    e-mail: cmarker@state.de.us
    Home page: N/A
  • Desmoid Tumor Research Foundation
    P.O. Box 273
    Suffern NY 10901
    Phone #: 914-262-6595
    800 #: N/A
    e-mail: info@dtrf.org
    Home page: http://www.dtrf.org
  • Familial GI Cancer Registry
    Mt. Sinai Hospital
    ON None M5G 1X5
    Phone #: 416-586-8334
    800 #: --
    e-mail: tberk@mtsinai.on.ca
    Home page: http://www.mtsinai.on.ca/familialgicancer
  • Familial Polyposis Registry
    Department of Colorectal Surgery
    Cleveland OH 44195-5001
    Phone #: 216-444-6470
    800 #: --
    e-mail: N/A
    Home page: N/A
  • Ferguson Hospital
    71 Sheldon Boulevard
    Grand Rapids MI 49503
    Phone #: 616-456-0202
    800 #: --
    e-mail: N/A
    Home page: N/A
  • Friends of Cancer Research
    2231 Crystal Drive
    Arlington VA 22202
    Phone #: 703-302-1503
    800 #: N/A
    e-mail: info@focr.org
    Home page: http://www.focr.org
  • Hereditary Colorectal Cancer Registry
    550 N. Broadway
    Baltimore MD 21205-2011
    Phone #: 410-955-4041
    800 #: N/A
    e-mail: hccregistry@jhmi.edu
    Home page: http://www.coloncancer.org
  • Intestinal Multiple Polyposis and Colorectal Cancer Registry
    P.O. Box 11
    Conyngham PA 18219
    Phone #: 717-788-3712
    800 #: --
    e-mail: user291524@aol.com
    Home page: N/A
  • Lance Armstrong Foundation
    PO Box 161550
    Austin TX 78716-1150
    Phone #: 512-236-8820
    800 #: 866-235-7205
    e-mail: N/A
    Home page: http://www.livestrong.org
  • M. D. Anderson Cancer Center Hereditary Colorectal Cancer Registry
    Department of Gastrointestinal Oncology
    Houston TX 77030
    Phone #: 713-792-3245
    800 #: 800-392-1611
    e-mail: hcc-editor@mdacc.tmc.edu
    Home page: http://www3.mdanderson.org/depts/hcc/registries.htm
  • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
    150 Custer Court
    Green Bay WI 54301-1243
    Phone #: 920-336-5333
    800 #: 877-336-5333
    e-mail: mums@netnet.net
    Home page: http://www.netnet.net/mums/
  • Madisons Foundation
    PO Box 241956
    Los Angeles CA 90024
    Phone #: 310-264-0826
    800 #: N/A
    e-mail: getinfo@madisonsfoundation.org
    Home page: http://www.madisonsfoundation.org
  • March of Dimes Birth Defects Foundation
    1275 Mamaroneck Avenue
    White Plains NY 10605
    Phone #: 914-428-7100
    800 #: 888-663-4637
    e-mail: Askus@marchofdimes.com
    Home page: http://www.marchofdimes.com
  • NIH/National Digestive Diseases Information Clearinghouse
    2 Information Way
    Bethesda MD 20892-3570
    Phone #: 301-654-3810
    800 #: 800-891-5389
    e-mail: nddic@info.niddk.nih.gov
    Home page: http://www.niddk.nih.gov
  • National Cancer Institute
    6116 Executive Blvd, MSC 8322, Room 3036A
    Bethesda MD 20892-8322
    Phone #: 301-435-3848
    800 #: 800-422-6237
    e-mail: N/A
    Home page: http://www.cancer.gov
  • Northwestern University Medical School
    Department of Surgery
    Chicago IL 60611
    Phone #: 312-943-5427
    800 #: --
    e-mail: N/A
    Home page: N/A
  • OncoLink: The University of Pennsylvania Cancer Center Resource
    3400 Spruce Street
    Philadelphia PA 19104-4283
    Phone #: 215-349-5445
    800 #: --
    e-mail: editors@oncolink.upenn.edu
    Home page: http://www.oncolink.upenn.edu
  • Roswell Park Family Cancer Registry
    Elm & Carlton Streets
    Buffalo NY 14263
    Phone #: 716-845-8400
    800 #: 800-685-6825
    e-mail: askrpci@roswellpark.org
    Home page: http://www.roswellpark.org
  • Southeastern Hereditary Colorectal Cancer Registry
    University Hospital
    Augusta GA 30910-3599
    Phone #: 706-774-8900
    800 #: --
    e-mail: cwheeler@uh.org
    Home page: N/A
  • Strang-Cornell Hereditary Colon Cancer Program
    428 East 72nd Street
    New York NY 10021
    Phone #: 212-794-4900
    800 #: --
    e-mail: mbertagnolli@partners.org
    Home page: http://www.strang.org
  • Wellness Community
    919 18th Street N.W.
    Washington DC 20006
    Phone #: 202-659-9709
    800 #: 888-793-9355
    e-mail: help@thewellnesscommunity.org
    Home page: http://www.thewellnesscommunity.org



For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html