Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Hydranencephaly


Synonyms of Hydranencephaly
  • Hydroanencephaly

Disorder Subdivisions



    General Discussion
    Hydranencephaly is a central nervous system disorder characterized by an enlarged head and neurological deficits. The exact cause of Hydranencephaly is not known. This extremely rare form of Hydrocephalus involves the absence of portions of the brain. Results of neurologic examination in newborns may be normal or abnormal. The head usually appears enlarged at birth. Vision impairment, lack of growth and intellectual deficits are symptomatic of this disorder.

    Organizations related to Hydranencephaly
    • Children's Brain Diseases Foundation
      350 Parnassus Avenue
      San Francisco CA 94117
      Phone #: 415-665-3003
      800 #: --
      e-mail: Jrider6022@aol.com
      Home page: N/A
    • Guardians of Hydrocephalus Research Foundation
      2618 Avenue Z
      Brooklyn NY 11235
      Phone #: 718-743-4473
      800 #: 800-458-8655
      e-mail: GHRF2618@aol.com
      Home page: N/A
    • Hydrocephalus Association
      870 Market Street
      San Francisco CA 94102
      Phone #: 415-732-7040
      800 #: 888-598-3789
      e-mail: pip@hydroassoc.org
      Home page: http://www.hydroassoc.org
    • International Hydranencephaly Support Group
      11870 285th Street
      None None V2W 1L9
      Phone #: 604--46-2-8691
      800 #: N/A
      e-mail: angelbearmom@shaw.ca
      Home page: http://www.hydranencephaly.com
    • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
      150 Custer Court
      Green Bay WI 54301-1243
      Phone #: 920-336-5333
      800 #: 877-336-5333
      e-mail: mums@netnet.net
      Home page: http://www.netnet.net/mums/
    • March of Dimes Birth Defects Foundation
      1275 Mamaroneck Avenue
      White Plains NY 10605
      Phone #: 914-428-7100
      800 #: 888-663-4637
      e-mail: Askus@marchofdimes.com
      Home page: http://www.marchofdimes.com
    • National Hydrocephalus Foundation
      12413 Centralia
      Lakewood CA 90715-1623
      Phone #: 562-924-6666
      800 #: 888-857-3434
      e-mail: nhf@earthlink.net
      Home page: http://www.nhfonline.org
    • National Institute of Neurological Disorders and Stroke (NINDS)
      31 Center Drive
      Bethesda MD 20892-2540
      Phone #: 301-496-5751
      800 #: 800-352-9424
      e-mail: braininfo@ninds.nih.gov
      Home page: http://www.ninds.nih.gov/
    • The Arc (a national organization on mental retardation)
      1010 Wayne Ave
      Silver Spring MD 20910
      Phone #: 301-565-3842
      800 #: 800-433-5255
      e-mail: info@thearc.org
      Home page: http://www.thearc.org/



    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html