Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Idiopathic Pulmonary Fibrosis


Synonyms of Idiopathic Pulmonary Fibrosis
  • Alveolocapillary block
  • Cryptogenic Fibrosing Alveolitis
  • Diffuse Fibrosing Alveolitis
  • Fibrosing Alveolitis
  • Hamman-Rich Syndrome
  • Interstitial Diffuse Pulmonary Fibrosis

Disorder Subdivisions



    General Discussion
    Idiopathic pulmonary fibrosis is an inflammatory lung disorder of unknown origin (idiopathic) characterized by abnormal formation of fibrous tissue (fibrosis) between the tiny air sacs (alveoli) or ducts of the lungs. Coughing and rapid, shallow breathing occur with moderate exercise. The skin may appear slightly bluish (cyanotic) due to lack of circulating oxygen. Complications such as infection, emphysema or heart problems may develop.

    Organizations related to Idiopathic Pulmonary Fibrosis
    • American Autoimmune Related Diseases Association, Inc.
      22100 Gratiot Avenue
      Eastpointe MI 48021
      Phone #: 586-776-3900
      800 #: 800-598-4668
      e-mail: aarda@aarda.org
      Home page: http://www.aarda.org/
    • American Lung Association
      61 Broadway, 6th Floor
      New York NY 10006
      Phone #: 212-315-8700
      800 #: 800-586-4872
      e-mail: N/A
      Home page: http://www.lungusa.org
    • AutoImmunity Community
      None
      None None None
      Phone #: (91-9) -552-9057
      800 #: N/A
      e-mail: bandrews@autoimmunitycommunity.org
      Home page: http://autoimmunitycommunity.org
    • Autoimmune Information Network, Inc
      PO Box 4121
      Brick NJ 08723
      Phone #: 732-664-9259
      800 #: N/A
      e-mail: autoimmunehelp@aol.com
      Home page: http://www.aininc.org
    • Coalition for Pulmonary Fibrosis
      1659 Bramham Lane
      San Jose CA 95118
      Phone #: 888-222-8541
      800 #: 888-222-8541
      e-mail: info@coalitionforpf.org
      Home page: http://www.coalitionforpf.org
    • European Society for Immunodeficiencies (ESID)
      c/o Dr. Esther de Vries
      Hertogenbosch None 5200 ME's
      Phone #: +31- 73--6992965
      800 #: N/A
      e-mail: info@esid.org
      Home page: http://www.esid.org
    • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
      150 Custer Court
      Green Bay WI 54301-1243
      Phone #: 920-336-5333
      800 #: 877-336-5333
      e-mail: mums@netnet.net
      Home page: http://www.netnet.net/mums/
    • NIH/National Heart, Lung and Blood Institute
      31 Center Drive MSC 2480
      Bethesda MD 20892-2480
      Phone #: 301-592-8573
      800 #: --
      e-mail: nhlbiinfo@rover.nhlbi.nih.gov
      Home page: http://www.nhlbi.nih.gov/
    • Pulmonary Fibrosis Foundation
      1332 N. Halsted
      Chicago IL 60622
      Phone #: 312-587-9272
      800 #: N/A
      e-mail: breathe@pulmonaryfibrosis.org
      Home page: http://www.pulmonaryfibrosis.org



    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html