Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Klippel-Trenaunay Syndrome


Synonyms of Klippel-Trenaunay Syndrome
  • Angio-Osteohypertrophy Syndrome
  • Congenital Dysplastic Angiectasia
  • Hemangiectatic Hypertrophy
  • Klippel-Trenaunay-Weber Syndrome
  • KTS
  • KTW Syndrome
  • Osteohypertrophic Nevus Flammeus

Disorder Subdivisions



    General Discussion
    Klippel-Trenaunay Syndrome, a rare disorder that is present at birth (congenital). Klippel-Trenaunay syndrome consists of the triad of cutaneous capillary malformation (port-wine stain), bone and soft tissue hypertrophy, and venous varicosities. Lymphatic malformations also can be present. The symptoms and findings associated with the disorder vary in range and severity from case to case.

    Organizations related to Klippel-Trenaunay Syndrome
    • HemiHypertrophy Support
      4581 Magnolia Dr.
      Suffolk VA 23435
      Phone #: 757-271-9000
      800 #: N/A
      e-mail: administrator@hemisupport.com
      Home page: http://www.hemisupport.com
    • Klippel-Trenaunay Support Group
      5404 Dundee Road
      Edina MN 55436
      Phone #: 952-925-2596
      800 #: --
      e-mail: j.vessey@att.net
      Home page: http://www.k-t.org
    • Lymphovenous Canada
      8 Silver Ave
      Ontario Intl M6R 1X8
      Phone #: 416--53-3-2428
      800 #: N/A
      e-mail: info@lymphovenous-canada.ca
      Home page: http://www.lymphovenous-canada.ca
    • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
      150 Custer Court
      Green Bay WI 54301-1243
      Phone #: 920-336-5333
      800 #: 877-336-5333
      e-mail: mums@netnet.net
      Home page: http://www.netnet.net/mums/
    • Madisons Foundation
      PO Box 241956
      Los Angeles CA 90024
      Phone #: 310-264-0826
      800 #: N/A
      e-mail: getinfo@madisonsfoundation.org
      Home page: http://www.madisonsfoundation.org
    • March of Dimes Birth Defects Foundation
      1275 Mamaroneck Avenue
      White Plains NY 10605
      Phone #: 914-428-7100
      800 #: 888-663-4637
      e-mail: Askus@marchofdimes.com
      Home page: http://www.marchofdimes.com
    • National Institute of Neurological Disorders and Stroke (NINDS)
      31 Center Drive
      Bethesda MD 20892-2540
      Phone #: 301-496-5751
      800 #: 800-352-9424
      e-mail: braininfo@ninds.nih.gov
      Home page: http://www.ninds.nih.gov/
    • National Organization of Vascular Anomalies
      PO Box 0358
      Findlay OH 45840-0358
      Phone #: N/A
      800 #: N/A
      e-mail: Khall@mail.novanews.org
      Home page: http://www.novanews.org
    • Nevus Network
      The Congenital Nevus Support Group
      West Salem OH 44287
      Phone #: 419-853-4525
      800 #: --
      e-mail: info@nevusnetwork.org
      Home page: http://www.nevusnetwork.org
    • Sturge-Weber Foundation
      PO Box 418
      Mt. Freedom NJ 07970
      Phone #: 973-895-4445
      800 #: 800-627-5482
      e-mail: swf@sturge-weber.org
      Home page: http://www.sturge-weber.org



    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html