Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Langerhans Cell Histiocytosis


Synonyms of Langerhans Cell Histiocytosis
  • Eosinophilic Granuloma
  • Hand-Schuller Christian Syndrome
  • Histiocytosis-X
  • Letterer-Siwe Disease

Disorder Subdivisions



    General Discussion
    Langerhans cell histiocytosis (LCH) is a non-malignant proliferation of Langerhans cells (LC). Children and adults may have LCH in skin (macular, papular, ulcerative, or seborrheic rashes), bones (lytic lesions), lymph nodes, brain (pituitary, cerebrum and cerebellum) lung, liver, spleen, and bone marrow. Systemic symptoms may include fever, weight loss, draining ears, diabetes insipidus or other endocrinopathies.

    Organizations related to Langerhans Cell Histiocytosis
    • American Lung Association
      61 Broadway, 6th Floor
      New York NY 10006
      Phone #: 212-315-8700
      800 #: 800-586-4872
      e-mail: N/A
      Home page: http://www.lungusa.org
    • Diabetes Insipidus Foundation, Inc.
      5203 New Prospect Court
      Ellicott City MD 21043
      Phone #: 410-480-0880
      800 #: --
      e-mail: info@diabetesinsipidus.org
      Home page: http://www.diabetesinsipidus.org
    • Histiocytosis Association of America
      332 North Broadway
      Pitman NJ 08071
      Phone #: 856-589-6606
      800 #: 800-548-2758
      e-mail: association@histio.org
      Home page: http://www.histio.org
    • Histiocytosis Association of Canada
      29095 Okanagan Mission RPO
      Kelowan, BC None V1W 1K2
      Phone #: 250--76-4-6104
      800 #: N/A
      e-mail: histio.canada@shaw.ca
      Home page: http://www.histio.org/ca
    • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
      150 Custer Court
      Green Bay WI 54301-1243
      Phone #: 920-336-5333
      800 #: 877-336-5333
      e-mail: mums@netnet.net
      Home page: http://www.netnet.net/mums/
    • March of Dimes Birth Defects Foundation
      1275 Mamaroneck Avenue
      White Plains NY 10605
      Phone #: 914-428-7100
      800 #: 888-663-4637
      e-mail: Askus@marchofdimes.com
      Home page: http://www.marchofdimes.com
    • NIH/National Heart, Lung and Blood Institute Information Center
      P.O. Box 30105
      Bethesda MD 20824-0105
      Phone #: 301-592-8573
      800 #: --
      e-mail: nhlbiinfo@rover.nhlbi.nih.gov
      Home page: N/A



    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html