Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Lichen Sclerosus


Synonyms of Lichen Sclerosus
  • Csillag's Disease (Sclerosus)
  • Guttate Morphea (Sclerosus)
  • Guttate Scleroderma, Lichen Sclerosus Type
  • Hallopeau I Disease
  • Lichen Sclerosus et Atrophicus
  • Von Zambusch Disease
  • White-Spot Disease

Disorder Subdivisions



    General Discussion
    Lichen sclerosus is a chronic skin disorder that most commonly affects post-menopausal women. However, it is sometimes identified among pre-menopausal women, and, even more rarely, among males. When found in males, the disease is known as balanitis xerotica obliterans.

    Lichen sclerosus is characterized by skin changes of the external genitalia (i.e., vulva, head of the penis), although other parts of the body may also be affected. Intense itching often accompanies attacks of lichen sclerosus. The disorder is not contagious nor is it a sexually transmitted disease. In the recent past, a genetic component for lichen sclerosus has been recognized. In addition, many clinical researchers believe that it is a disorder of the immunological system. The understanding of the causes of this disorder is still incomplete. Lichen sclerosus can develop concurrently with other conditions.

    Organizations related to Lichen Sclerosus
    • American Autoimmune Related Diseases Association, Inc.
      22100 Gratiot Avenue
      Eastpointe MI 48021
      Phone #: 586-776-3900
      800 #: 800-598-4668
      e-mail: aarda@aarda.org
      Home page: http://www.aarda.org/
    • AutoImmunity Community
      None
      None None None
      Phone #: (91-9) -552-9057
      800 #: N/A
      e-mail: bandrews@autoimmunitycommunity.org
      Home page: http://autoimmunitycommunity.org
    • International Scleroderma Network
      7455 France Ave So #266
      Edina MN 55435
      Phone #: 952-831-3091
      800 #: 800-564-7099
      e-mail: site-inquiries@sclero.org
      Home page: http://www.sclero.org
    • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
      150 Custer Court
      Green Bay WI 54301-1243
      Phone #: 920-336-5333
      800 #: 877-336-5333
      e-mail: mums@netnet.net
      Home page: http://www.netnet.net/mums/
    • NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
      1 AMS Circle
      Bethesda MD 20892-3675
      Phone #: 301-495-4484
      800 #: 877-226-4267
      e-mail: NIAMSinfo@mail.nih.gov
      Home page: http://www.niams.nih.gov/Health_Info
    • National Vulvodynia Association
      P.O. Box 4491
      Silver Spring MD 20914-4491
      Phone #: 301-299-0775
      800 #: --
      e-mail: mate@nva.org
      Home page: http://www.nva.org
    • National Women's Health Network
      514 10th Street NW
      Washington D.C. 20004
      Phone #: 202-628-7814
      800 #: --
      e-mail: nwhn@nwhn.org
      Home page: http://www.womenshealthnetwork.org
    • National Women's Health Resource Center
      157 Broad Street
      Red Bank NJ 07701
      Phone #: 732-530-3425
      800 #: 877-986-9472
      e-mail: mchin@healthywomen.org
      Home page: http://www.healthywomen.org



    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html