Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Lymphangioleiomyomatosis


Synonyms of Lymphangioleiomyomatosis
  • LAM
  • Lymphangioleimyomatosis
  • Lymphangioleiomatosis
  • Pulmonary Lymphangiomyomatosis
  • Sporadic Lymphangioleiomyomatosis

Disorder Subdivisions



    General Discussion
    Lymphangioleiomyomatosis (LAM) is a rare progressive multisystem disorder that predominantly affects women of childbearing age. It occurs in women who have tuberous sclerosis, and also in women who do not have a heritable genetic disorder. LAM is characterized by the spread and uncontrolled growth (proliferation) of specialized cells (smooth muscle-like LAM cells) in certain organs of the body, especially the lungs, kidney and lymphatics. Common symptoms associated with LAM include coughing and/or difficulty breathing (dyspnea), especially following periods of exercise or exertion. Affected individuals may also experience complications including collapse of a lung or fluid accumulation around the lungs (pleural effusion). The disorder is progressive and, in some cases, may result in chronic respiratory failure.

    Organizations related to Lymphangioleiomyomatosis
    • American Lung Association
      61 Broadway, 6th Floor
      New York NY 10006
      Phone #: 212-315-8700
      800 #: 800-586-4872
      e-mail: N/A
      Home page: http://www.lungusa.org
    • British Lung Foundation
      73-75 Goswell Road
      London Intl EC1V 7ER
      Phone #: 084-58 -50 50 20
      800 #: --
      e-mail: info@britishlungfoundation.com
      Home page: http://www.lunguk.org
    • LAM Foundation
      4015 Executive Park Dr., Suite 320
      Cincinnati OH 45241
      Phone #: 513-777-6889
      800 #: 877-287-3526
      e-mail: info@thelamfoundation.org
      Home page: www.thelamfoundation.org
    • LAM Treatment Alliance, Inc.
      87 Garden Street
      Cambridge MA 02138
      Phone #: 617-460-7339
      800 #: N/A
      e-mail: info@LAMTreatmentAlliance.org
      Home page: http://www.LAMTreatmentAlliance.org
    • Madisons Foundation
      PO Box 241956
      Los Angeles CA 90024
      Phone #: 310-264-0826
      800 #: N/A
      e-mail: getinfo@madisonsfoundation.org
      Home page: http://www.madisonsfoundation.org
    • NIH/National Heart, Lung and Blood Institute Information Center
      P.O. Box 30105
      Bethesda MD 20824-0105
      Phone #: 301-592-8573
      800 #: --
      e-mail: nhlbiinfo@rover.nhlbi.nih.gov
      Home page: N/A
    • Second Wind Lung Transplant Association, Inc.
      23609 Talbot
      St Clair Shores MI 48082
      Phone #: 586-294-3162
      800 #: 888-855-9463
      e-mail: beanpahoun@aol.com
      Home page: http://www.2ndwind.org



    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html