Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Macular Degeneration


Synonyms of Macular Degeneration
  • Foveal Dystrophy, Progressive
  • Macula Lutea, degeneration
  • Macular Dystrophy
  • Tapetoretinal Degeneration

Disorder Subdivisions

  • Adult Macula Lutea Retinae Degeneration
  • Behr 1
  • Behr 2
  • Juvenile Macular Degeneration
  • Macular Degeneration, Disciform
  • Macular Degeneration, Senile
  • Presenile Macula Lutea Retinae Degeneration
  • Stargardt's Disease (STGD)


General Discussion
Macular degeneration is a degenerative disease affecting the macula or center of the retina of the eye. It results in progressive loss of central vision. Occurring most often among older people, it is the most common cause of vision loss in people over age 55. It is believed that both genetic and environmental factors influence this disease.

Organizations related to Macular Degeneration
  • American Council of the Blind, Inc.
    1155 15th Street
    Washington DC 20005
    Phone #: 202-467-5081
    800 #: 800-424-8666
    e-mail: N/A
    Home page: http://www.acb.org
  • American Foundation for the Blind
    11 Penn Plaza
    New York NY 10001
    Phone #: 212-502-7600
    800 #: 800-232-5463
    e-mail: afbinfo@afb.org
    Home page: http://www.afb.org
  • American Health Assistance Foundation
    22512 Gateway Center Drive
    Clarksburg MD 20871
    Phone #: 301-948-3244
    800 #: 800-437-2423
    e-mail: eberger@ahaf.org
    Home page: http://www.ahaf.org
  • Association for Macular Diseases, Inc.
    210 East 64th Street
    New York NY 10021
    Phone #: 212-605-3719
    800 #: --
    e-mail: association@retinal-research.org
    Home page: http:/www.macula.org/association/about.html
  • Council of Families with Visual Impairment
    1155 15th St. NW
    Washington DC 20005
    Phone #: 202-465-5081
    800 #: --
    e-mail: info@acb.org
    Home page: http://www.acb.org/
  • EyeCare Foundation
    115 East 61st Street
    New York NY 10021
    Phone #: 212-832-7297
    800 #: --
    e-mail: contactus@eyecarefoundation.org
    Home page: http://www.eyecarefoundation.org
  • Foundation Fighting Blindness (Canada)
    60 St. Clair Ave East
    Toronto, Ontario None M4T 1N5
    Phone #: 416--36-0-4200
    800 #: 800--46-1-3331
    e-mail: info@ffb.ca
    Home page: http://www.ffb.ca
  • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
    150 Custer Court
    Green Bay WI 54301-1243
    Phone #: 920-336-5333
    800 #: 877-336-5333
    e-mail: mums@netnet.net
    Home page: http://www.netnet.net/mums/
  • Macular Degeneration International
    6700 N. Oracle Rd
    Tucson AZ 85704
    Phone #: N/A
    800 #: 800-683-5555
    e-mail: TPerski@aol.com
    Home page: http://www.maculardegeneration.org
  • Macular Degeneration Support, Inc.
    3600 Blue Ridge
    Grandview MO 64030
    Phone #: 816-761-7080
    800 #: N/A
    e-mail: director@mdsupport.org
    Home page: http://www.mdsupport.org
  • Macular Disease Society
    Darwin House
    Andover, Hampshire None SP10 1BE
    Phone #: 012-64 -350551
    800 #: N/A
    e-mail: N/A
    Home page: N/A
  • NIH/National Eye Institute
    Building 31 Rm 6A32
    Bethesda MD 20892-2510
    Phone #: 301-496-5248
    800 #: --
    e-mail: 2020@nei.nih.gov
    Home page: http://www.nei.nih.gov/
  • National Association for Visually Handicapped
    22 West 21st Street
    New York NY 10010
    Phone #: 212-889-3141
    800 #: --
    e-mail: staff@navh.org
    Home page: http://www.navh.org
  • Retina International
    Ausstellungsstrasse 36
    Z?rich None None
    Phone #: (0)-44 -444 10 77
    800 #: N/A
    e-mail: c.fasser@e-link.ch
    Home page: http://www.retina-international.org
  • Vision World Wide, Inc.
    5707 Brockton Drive
    Indianapolis IN 46220-5481
    Phone #: 317-254-1332
    800 #: N/A
    e-mail: visionworldwide@yahoo.com
    Home page: http://www.visionww.org



For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html