Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Moebius Syndrome


Synonyms of Moebius Syndrome
  • Congenital Facial Diplegia Syndrome
  • Congenital Oculofacial Paralysis
  • Mobius Syndrome
  • Moebius Sequence

Disorder Subdivisions



    General Discussion
    Moebius syndrome is a rare developmental disorder present at birth (congenital) that is characterized by facial paralysis. Affected individuals are not able to smile or frown because two important nerves, the sixth (abducens) and seventh (facialis) cranial nerves are absent or not fully developed. In some instances, this syndrome may also be associated with physical problems in other parts of the body.

    Organizations related to Moebius Syndrome
    • AmeriFace
      PO Box 751112
      Las Vegas NV 89136
      Phone #: 702-769-9264
      800 #: 888-486-1209
      e-mail: info@ameriface.org
      Home page: http://www.ameriface.org
    • Birth Defect Research for Children
      930 Woodcock Rd
      Orlando FL 32803
      Phone #: 407-895-0802
      800 #: --
      e-mail: staff@birthdefects.org
      Home page: http://www.birthdefects.org
    • Children's Craniofacial Association
      13140 Coit Road
      Dallas TX 75240
      Phone #: 214-570-9099
      800 #: 800-535-3643
      e-mail: csmith@ccakids.com
      Home page: http://www.ccakids.com
    • Cleft Palate Foundation
      1504 East Franklin Street
      Chapel Hill NC 27514-2820
      Phone #: 919-933-9044
      800 #: 800-242-5338
      e-mail: info@cleftline.org
      Home page: http://www.cleftline.org
    • FACES: The National Craniofacial Association
      P.O. Box 11082
      Chattanooga TN 37401
      Phone #: 423-266-1632
      800 #: 800-332-2373
      e-mail: faces@faces-cranio.org
      Home page: http://www.faces-cranio.org
    • Forward Face, Inc.
      317 East 34th Street
      New York NY 10016
      Phone #: 212-684-5860
      800 #: 800-393-3223
      e-mail: info@forwardface.org
      Home page: http://www.forwardface.org
    • Let Them Hear Foundation
      1900 University Ave #101
      East Palo Alto CA 94303
      Phone #: 650-462-3143
      800 #: 877-735-2929
      e-mail: info@letthemhear.org
      Home page: http://www.letthemhear.org
    • Let's Face It (USA)
      P.O. Box 29972
      Bellingham WA 98228-1972
      Phone #: 360-676-7325
      800 #: --
      e-mail: faceit@umich.edu
      Home page: http://www.dent.umich.edu/faceit
    • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
      150 Custer Court
      Green Bay WI 54301-1243
      Phone #: 920-336-5333
      800 #: 877-336-5333
      e-mail: mums@netnet.net
      Home page: http://www.netnet.net/mums/
    • Madisons Foundation
      PO Box 241956
      Los Angeles CA 90024
      Phone #: 310-264-0826
      800 #: N/A
      e-mail: getinfo@madisonsfoundation.org
      Home page: http://www.madisonsfoundation.org
    • Moebius Syndrome Association
      5011 Hillside Drive
      Ontario None L0R 1B7
      Phone #: (90-5) -563-0938
      800 #: --
      e-mail: marg@ciaccess.com
      Home page: http://www.ciaccess.com/moebius/msfoc/msfoc.htm
    • Moebius Syndrome Foundation
      P.O. Box 147
      Pilot Grove MO 65276
      Phone #: 660-834-3406
      800 #: --
      e-mail: vicki@moebiussyndrome.com
      Home page: http://www.moebiussyndrome.com
    • Moebius Syndrome Support Network (UK)
      41 Westley Ave
      Tyne and Wear Intl NE26 4NW
      Phone #: (01-91)- 253 2090
      800 #: --
      e-mail: moebius@alex-b.net
      Home page: http://www.moebius-support.org.uk
    • National Institute of Neurological Disorders and Stroke (NINDS)
      31 Center Drive
      Bethesda MD 20892-2540
      Phone #: 301-496-5751
      800 #: 800-352-9424
      e-mail: braininfo@ninds.nih.gov
      Home page: http://www.ninds.nih.gov/
    • Society for the Rehabilitation of the Facially Disfigured, Inc.
      550 First Avenue
      New York NY 10016
      Phone #: 212-340-5400
      800 #: --
      e-mail: N/A
      Home page: N/A



    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html