Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Nevoid Basal Cell Carcinoma Syndrome


Synonyms of Nevoid Basal Cell Carcinoma Syndrome
  • Basal Cell Nevus Syndrome
  • Gorlin-Goltz Syndrome
  • Gorlin Syndrome
  • Hermans-Herzberg Phakomatosis
  • NBCCS
  • Nevus, Epitheliomatosis Multiplex with

Disorder Subdivisions



    General Discussion
    Nevoid basal cell carcinoma syndrome (NBCCS), also known as Gorlin or Gorlin-Goltz syndrome, is an inherited disorder characterized by a tendency to develop multiple cancerous cysts, lesions (nevi) of the skin and lining of the mouth, and other developmental and systemic defects. Almost any of the body?s organ systems may be affected.

    The lesions (nevus, nevi) are usually found in the outer layer of the skin (epidermis) or in the mucous membranes of the mouth. The connective tissues and the nervous and vascular (blood vessel) systems of the body may also be affected. The skin lesions are limited in size, but not in number, and are not usually due to any external causes.

    Organizations related to Nevoid Basal Cell Carcinoma Syndrome
    • American Cancer Society, Inc.
      1599 Clifton Road NE
      Atlanta GA 30329
      Phone #: 404-320-3333
      800 #: 800-227-2345
      e-mail: N/A
      Home page: http://www.cancer.org
    • Basal Cell Carcinoma Nevus Syndrome Life Support Network
      PO Box 321
      Burton OH 44021
      Phone #: 440-834-0011
      800 #: 866-834-1895
      e-mail: info@bccns.org
      Home page: www.bccns.org
    • Cancer.Net
      American Society of Clinical Oncology
      Alexandria VA 22314
      Phone #: 571-483-1780
      800 #: 888-651-3038
      e-mail: contactus@cancer.net
      Home page: http://www.cancer.net/patient
    • Friends of Cancer Research
      2231 Crystal Drive
      Arlington VA 22202
      Phone #: 703-302-1503
      800 #: N/A
      e-mail: info@focr.org
      Home page: http://www.focr.org
    • Gorlin Syndrome Group
      11 Blackberry Way
      Penwortham, Preston None PR1 9LQ
      Phone #: 017-72 -517624
      800 #: N/A
      e-mail: gorlin.group@btconnect.com
      Home page: http://www.gorlingroup.co.uk
    • Lance Armstrong Foundation
      PO Box 161550
      Austin TX 78716-1150
      Phone #: 512-236-8820
      800 #: 866-235-7205
      e-mail: N/A
      Home page: http://www.livestrong.org
    • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
      150 Custer Court
      Green Bay WI 54301-1243
      Phone #: 920-336-5333
      800 #: 877-336-5333
      e-mail: mums@netnet.net
      Home page: http://www.netnet.net/mums/
    • National Cancer Institute
      6116 Executive Blvd, MSC 8322, Room 3036A
      Bethesda MD 20892-8322
      Phone #: 301-435-3848
      800 #: 800-422-6237
      e-mail: N/A
      Home page: http://www.cancer.gov
    • OncoLink: The University of Pennsylvania Cancer Center Resource
      3400 Spruce Street
      Philadelphia PA 19104-4283
      Phone #: 215-349-5445
      800 #: --
      e-mail: editors@oncolink.upenn.edu
      Home page: http://www.oncolink.upenn.edu
    • Rare Cancer Alliance
      1649 North Pacana Way
      Green Valley AZ 85614
      Phone #: 520-625-5495
      800 #: --
      e-mail: sharon.lane@rare-cancer.org
      Home page: http://www.rare-cancer.org
    • Skin Cancer Foundation
      245 Fifth Avenue
      New York NY 10016
      Phone #: N/A
      800 #: 800-754-6490
      e-mail: info@skincancer.org
      Home page: http://www.skincancer.org
    • Wellness Community
      919 18th Street N.W.
      Washington DC 20006
      Phone #: 202-659-9709
      800 #: 888-793-9355
      e-mail: help@thewellnesscommunity.org
      Home page: http://www.thewellnesscommunity.org



    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html