Disorder Subdivisions
Climb Building
Crewe Intl CW2 6BG
Phone #: +44- 87-0 7700 325
800 #: --
e-mail: info@climb.org.uk
Home page: http://www.CLIMB.org.uk
1301 Amelia Avenue
Portsmouth VA 23707
Phone #: 757-465-8169
800 #: N/A
e-mail: hcsgroup@yahoo.com
Home page: http://www.hajdu-cheney.com
1900 University Ave #101
East Palo Alto CA 94303
Phone #: 650-462-3143
800 #: 877-735-2929
e-mail: info@letthemhear.org
Home page: http://www.letthemhear.org
1 AMS Circle
Bethesda MD 20892-3675
Phone #: 301-495-4484
800 #: 877-226-4267
e-mail: NIAMSinfo@mail.nih.gov
Home page: http://www.niams.nih.gov/Health_Info
2 AMS Circle
Bethesda MD 20892-3676
Phone #: 202-223-0344
800 #: 800-624-2663
e-mail: niamsboneinfo@mail.nih.gov
Home page: http://www.niams.nih.gov/Health_Info/Bone/
37 Bristol Rd
Winterbourne, S Glos Intl BS36 1RQ
Phone #: 44 -014-5 4852199
800 #: --
e-mail: info@ost.org.uk
Home page: http://www.ost.org.uk
120 Wall Street
New York NY 10005
Phone #: 212-509-5335
800 #: 800-237-2438
e-mail: pagetfdn@aol.com
Home page: http://www.paget.org
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html
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