Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Pheochromocytoma


Synonyms of Pheochromocytoma
  • Chromaffin Cell Tumor

Disorder Subdivisions

  • Extra-adrenal Pheochromocytoma
  • Malignant Pheochromocytoma
  • Paraganglioma


General Discussion
Pheochromocytoma is a rare type of tumor that arises from certain cells known as chromaffin cells, which produce hormones necessary for the body to function properly. Most pheochromocytomas originate in one of the two adrenal glands located above the kidneys in the back of the upper abdomen. Most chromaffin cells are found in the adrenal gland?s inner layer, which is known as the adrenal medulla. Approximately 90 percent of pheochromocytomas occur in the adrenal medulla. Approximately 10 percent occur outside of this area. These cases are referred to as extra-adrenal pheochromocytomas or paragangliomas. Paragangliomas may be found in the chest, heart, bladder, and/or neck or base of the skull. Symptoms associated with pheochromocytomas include high blood pressure (hypertension), headaches, excessive sweating, and/or heart palpitations. In most cases, pheochromocytomas occur randomly, for unknown reasons (sporadically). In approximately 10 to 20 percent of cases, pheochromocytomas may be inherited as an autosomal dominant trait. Some inherited cases may occur as part of a larger disorder such as multiple endocrine neoplasia types 2a and 2b, von Hippel-Lindau syndrome, or neurofibromatosis or familial paraganglioma syndromes.

Organizations related to Pheochromocytoma
  • American Cancer Society, Inc.
    1599 Clifton Road NE
    Atlanta GA 30329
    Phone #: 404-320-3333
    800 #: 800-227-2345
    e-mail: N/A
    Home page: http://www.cancer.org
  • Friends of Cancer Research
    2231 Crystal Drive
    Arlington VA 22202
    Phone #: 703-302-1503
    800 #: N/A
    e-mail: info@focr.org
    Home page: http://www.focr.org
  • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
    150 Custer Court
    Green Bay WI 54301-1243
    Phone #: 920-336-5333
    800 #: 877-336-5333
    e-mail: mums@netnet.net
    Home page: http://www.netnet.net/mums/
  • Madisons Foundation
    PO Box 241956
    Los Angeles CA 90024
    Phone #: 310-264-0826
    800 #: N/A
    e-mail: getinfo@madisonsfoundation.org
    Home page: http://www.madisonsfoundation.org
  • March of Dimes Birth Defects Foundation
    1275 Mamaroneck Avenue
    White Plains NY 10605
    Phone #: 914-428-7100
    800 #: 888-663-4637
    e-mail: Askus@marchofdimes.com
    Home page: http://www.marchofdimes.com
  • National Adrenal Diseases Foundation
    505 Northern Boulevard
    Great Neck NY 11021
    Phone #: 516-487-4992
    800 #: --
    e-mail: NADFmail@aol.com
    Home page: http://www.medhelp.org/nadf
  • National Cancer Institute
    6116 Executive Blvd, MSC 8322, Room 3036A
    Bethesda MD 20892-8322
    Phone #: 301-435-3848
    800 #: 800-422-6237
    e-mail: N/A
    Home page: http://www.cancer.gov
  • National Dysautonomia Research Foundation
    PO Box 301
    Red Wing MN 55066-0102
    Phone #: 651-267-0525
    800 #: --
    e-mail: ndrf@ndrf.org
    Home page: http://www.ndrf.org
  • Rare Cancer Alliance
    1649 North Pacana Way
    Green Valley AZ 85614
    Phone #: 520-625-5495
    800 #: --
    e-mail: sharon.lane@rare-cancer.org
    Home page: http://www.rare-cancer.org
  • Wellness Community
    919 18th Street N.W.
    Washington DC 20006
    Phone #: 202-659-9709
    800 #: 888-793-9355
    e-mail: help@thewellnesscommunity.org
    Home page: http://www.thewellnesscommunity.org



For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html