Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Pierre Robin Sequence


Synonyms of Pierre Robin Sequence
  • Glossoptosis, Micrognathia, and Cleft Palate
  • Pierre Robin
  • Pierre Robin Anomalad
  • Pierre Robin Complex
  • Pierre Robin Deformity
  • Pierre Robin Malformation Sequence
  • Pierre Robin Syndrome
  • Pierre Robin Triad
  • Robin Anomalad
  • Robin Complex
  • Robin Syndrome

Disorder Subdivisions



    General Discussion
    Pierre Robin sequence is characterized by an unusually small lower jaw (micrognathia) and downward displacement of the tongue (glossoptosis). Some infants also have an abnormal opening in the roof of the mouth (cleft palate); both the soft and hard palate can be affected.

    Organizations related to Pierre Robin Sequence
    • Birth Defect Research for Children
      930 Woodcock Rd
      Orlando FL 32803
      Phone #: 407-895-0802
      800 #: --
      e-mail: staff@birthdefects.org
      Home page: http://www.birthdefects.org
    • Children's Craniofacial Association
      13140 Coit Road
      Dallas TX 75240
      Phone #: 214-570-9099
      800 #: 800-535-3643
      e-mail: csmith@ccakids.com
      Home page: http://www.ccakids.com
    • Congenital Heart Anomalies, Support, Education, & Resources
      2112 North Wilkins Road
      Swanton OH 43558
      Phone #: 419-825-5575
      800 #: --
      e-mail: chaser@compuserve.com
      Home page: http://www.csun.edu/~hcmth011/chaser/chaser-news.html
    • FACES: The National Craniofacial Association
      P.O. Box 11082
      Chattanooga TN 37401
      Phone #: 423-266-1632
      800 #: 800-332-2373
      e-mail: faces@faces-cranio.org
      Home page: http://www.faces-cranio.org
    • Let Them Hear Foundation
      1900 University Ave #101
      East Palo Alto CA 94303
      Phone #: 650-462-3143
      800 #: 877-735-2929
      e-mail: info@letthemhear.org
      Home page: http://www.letthemhear.org
    • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
      150 Custer Court
      Green Bay WI 54301-1243
      Phone #: 920-336-5333
      800 #: 877-336-5333
      e-mail: mums@netnet.net
      Home page: http://www.netnet.net/mums/
    • Madisons Foundation
      PO Box 241956
      Los Angeles CA 90024
      Phone #: 310-264-0826
      800 #: N/A
      e-mail: getinfo@madisonsfoundation.org
      Home page: http://www.madisonsfoundation.org
    • Pierre Robin Network
      3604 Biscayne
      Quincy IL 62305
      Phone #: 217-224-0698
      800 #: --
      e-mail: help@pierrerobin.org
      Home page: http://www.pierrerobin.org
    • Prescription Parents
      Prescription Parent, Inc.
      Needham MA 02492
      Phone #: 617-499-1936
      800 #: --
      e-mail: info@prescriptionparents.org
      Home page: http://www.prescriptionparents.com
    • Wide Smiles
      P.O. Box 5153
      Stockton CA 95205-0153
      Phone #: 209-942-2812
      800 #: --
      e-mail: JoSmiles@yahoo.com
      Home page: http://www.widesmiles.org



    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html