Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Post Polio Syndrome


Synonyms of Post Polio Syndrome
  • Polio, Late Effects
  • Post-Polio Muscular Atrophy
  • Postpoliomyelitis syndrome
  • Post-Polio Sequelae

Disorder Subdivisions



    General Discussion
    Post-polio syndrome (PPS) is a syndrome that affects some people who have had polio (poliomyelitis) and occurs many years (typically from 10 to 40 years) after recovery from the initial infection. It is characterized by the development of progressive weakness in muscles that were affected by the original polio infection. In addition, those affected may experience extreme fatigue and joint pain. Skeletal deformities, such as scoliosis, may occur as a result of this syndrome. There is variation in the severity of symptoms. In severe cases, symptoms may mimic those of the rare disorder known as Lou Gehrig?s disease (amyotrophic lateral sclerosis). The degree of muscle atrophy during the post-polio period appears to reflect the severity of the impact of the initial polio infection. People who were significantly affected by polio are more likely to experience severe symptoms from post-polio syndrome. The cause of this syndrome is not known. Although exact numbers are not available, it has been estimated that there are 300,000 polio survivors in the United States and that from one-fourth to one-half of them may ultimately develop some degree of post-polio syndrome.

    Organizations related to Post Polio Syndrome
    • British Polio Fellowship
      Eagle Office Centre
      Ruislip None HA4 6SE
      Phone #: 080-0 0-180 586
      800 #: --
      e-mail: info@britishpolio.org.uk
      Home page: www.britishpolio.org.uk
    • Centers for Disease Control and Prevention
      1600 Clifton Road NE
      Atlanta GA 30333
      Phone #: 404-639-3534
      800 #: 800-311-3435
      e-mail: http://www.cdc.gov/netinfo.htm
      Home page: http://www.cdc.gov/
    • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
      150 Custer Court
      Green Bay WI 54301-1243
      Phone #: 920-336-5333
      800 #: 877-336-5333
      e-mail: mums@netnet.net
      Home page: http://www.netnet.net/mums/
    • New Horizons Un-Limited, Inc.
      811 East Wisconsin Ave
      Milwaukee WI 53202
      Phone #: 414-299-0124
      800 #: N/A
      e-mail: horizons@new-horizons.org
      Home page: http://www.new-horizons.org
    • Polio Society
      4200 Wisconsin Avenue
      Washington DC 20016
      Phone #: 301-897-8180
      800 #: --
      e-mail: N/A
      Home page: http://www.php.com/include/agency/agency_item.php?AgencyID=1823&where_keywords=
    • Post-Polio Health International
      4207 Lindell Boulevard
      St. Louis MO 63108-2915
      Phone #: 314-534-0475
      800 #: --
      e-mail: info@post-polio.org
      Home page: http://www.post-polio.org



    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html