Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Retinitis Pigmentosa


Synonyms of Retinitis Pigmentosa
  • Progressive Pigmentary Retinopathy
  • Rod-cone dystrophy
  • RP

Disorder Subdivisions



    General Discussion
    Retinitis pigmentosa (RP) is one name for a large group of inherited vision disorders that causes progressive degeneration of the retina, the light sensitive membrane that coats the inside of the eyes. Peripheral (or side) vision gradually decreases and eventually is lost in most cases. Central vision is usually preserved until late in these conditions. Some forms of RP can be associated with deafness, obesity, kidney disease, and various other general health problems, including central nervous system and metabolic disorders, and occasionally chromosomal abnormalities.

    Organizations related to Retinitis Pigmentosa
    • American Council of the Blind, Inc.
      1155 15th Street
      Washington DC 20005
      Phone #: 202-467-5081
      800 #: 800-424-8666
      e-mail: N/A
      Home page: http://www.acb.org
    • American Foundation for the Blind
      11 Penn Plaza
      New York NY 10001
      Phone #: 212-502-7600
      800 #: 800-232-5463
      e-mail: afbinfo@afb.org
      Home page: http://www.afb.org
    • American Printing House for the Blind
      1839 Frankfort Avenue
      Louisville KY 40206-0085
      Phone #: 502-895-2405
      800 #: 800-223-1839
      e-mail: info@aph.org
      Home page: http://www.aph.org
    • Blind Children's Center
      4120 Marathon Street
      Los Angeles CA 90029-3584
      Phone #: 323-664-2153
      800 #: 800-222-3566
      e-mail: info@blindchildrenscenter.org
      Home page: http://www.blindchildrenscenter.org
    • Chromosome
      11435 Cronhill Drive
      Owings Mills MD 21117-2220
      Phone #: 410-568-0150
      800 #: 800-683-5555
      e-mail: info@blindness.org
      Home page: http://www.fightblindness.org
    • Council of Families with Visual Impairment
      1155 15th St. NW
      Washington DC 20005
      Phone #: 202-465-5081
      800 #: --
      e-mail: info@acb.org
      Home page: http://www.acb.org/
    • Foundation Fighting Blindness (Canada)
      60 St. Clair Ave East
      Toronto, Ontario None M4T 1N5
      Phone #: 416--36-0-4200
      800 #: 800--46-1-3331
      e-mail: info@ffb.ca
      Home page: http://www.ffb.ca
    • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
      150 Custer Court
      Green Bay WI 54301-1243
      Phone #: 920-336-5333
      800 #: 877-336-5333
      e-mail: mums@netnet.net
      Home page: http://www.netnet.net/mums/
    • NIH/National Eye Institute
      Building 31 Rm 6A32
      Bethesda MD 20892-2510
      Phone #: 301-496-5248
      800 #: --
      e-mail: 2020@nei.nih.gov
      Home page: http://www.nei.nih.gov/
    • National Association for Parents of Children with Visual Impairments (NAPVI)
      P.O. Box 317
      Watertown MA 02472
      Phone #: 617-972-7441
      800 #: 800-562-6265
      e-mail: napvi@perkins.org
      Home page: http://www.napvi.org
    • National Association for Visually Handicapped
      22 West 21st Street
      New York NY 10010
      Phone #: 212-889-3141
      800 #: --
      e-mail: staff@navh.org
      Home page: http://www.navh.org
    • National Federation of the Blind
      1800 Johnson Street
      Baltimore MD 21230
      Phone #: 410-659-9314
      800 #: --
      e-mail: nfb@nfb.org
      Home page: http://www.nfb.org
    • Perkins School for the Blind
      175 North Beacon St.
      Watertown MA 02472
      Phone #: 617-924-3434
      800 #: N/A
      e-mail: Info@Perkins.org
      Home page: http://www.Perkins.org
    • ROPARD:The Association for Retinopathy of Prematurity and Related Diseases
      P.O.Box 250425
      Franklin MI 48025
      Phone #: 248-549-2671
      800 #: 800-788-2020
      e-mail: ropard@yahoo.com
      Home page: http://www.ropard.org
    • Recording for the Blind, Inc.
      545 Fifth Avenue
      New York NY 10017
      Phone #: --
      800 #: 800-221-4792
      e-mail: N/A
      Home page: N/A
    • Retina International
      Ausstellungsstrasse 36
      Z?rich None None
      Phone #: (0)-44 -444 10 77
      800 #: N/A
      e-mail: c.fasser@e-link.ch
      Home page: http://www.retina-international.org
    • Retinitis Pigmentosa International
      P.O. Box 900
      Woodland Hills CA 91365
      Phone #: 818-992-0500
      800 #: 800-344-4877
      e-mail: info@international.org
      Home page: http://www.rpinternational.org
    • Vision World Wide, Inc.
      5707 Brockton Drive
      Indianapolis IN 46220-5481
      Phone #: 317-254-1332
      800 #: N/A
      e-mail: visionworldwide@yahoo.com
      Home page: http://www.visionww.org



    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html