Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Romano Ward Syndrome


Synonyms of Romano Ward Syndrome
  • Autosomal Dominant Long QT Syndrome
  • Long QT Syndrome Type 1
  • Long QT Syndrome without Deafness
  • LQTS1
  • Romano-Ward Long QT Syndrome
  • RWS
  • Ward-Romano Syndrome

Disorder Subdivisions



    General Discussion
    Romano-Ward syndrome is an inherited heart (cardiac) disorder characterized by abnormalities affecting the electrical system of the heart. The severity of Romano-Ward syndrome varies greatly from case to case. Some individuals may have no apparent symptoms (asymptomatic); others may develop abnormally increased heartbeats (tachyarrhythmias) resulting in episodes of unconsciousness (syncope), cardiac arrest, and potentially sudden death. Romano-Ward syndrome is inherited as an autosomal dominant trait.
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    Organizations related to Romano Ward Syndrome
    • American Heart Association
      National Center
      Dallas TX 75231-4596
      Phone #: 214-373-6300
      800 #: 800-242-8721
      e-mail: inquire@heart.org
      Home page: http://www.americanheart.org
    • European Long QT Syndrome Information Center
      Web Site on the Internet
      Nidau Intl 2560
      Phone #: 004-179-4741535
      800 #: --
      e-mail: info@qtsyndrome.ch
      Home page: http://www.qtsyndrome.ch
    • Genetic and Rare Diseases (GARD) Information Center
      PO Box 8126
      Gaithersburg MD 20898-8126
      Phone #: 301-519-3194
      800 #: 888-205-2311
      e-mail: gardinfo@nih.gov
      Home page: http://www.genome.gov/10000409
    • HOPE (The Heart of Pediatric Electrophysiology)
      PO Box 519
      Park Ridge NJ 07565
      Phone #: 201-505-9383
      800 #: 877-394-4673
      e-mail: info@heartbeatsofhope.org, info@timothysyndrome.org
      Home page: http://www.heartbeatsofhope.org;
    • International Long QT Syndrome Registry
      P.O. Box 653
      Rochester NY 14642-8653
      Phone #: 585-276-0016
      800 #: --
      e-mail: N/A
      Home page: N/A
    • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
      150 Custer Court
      Green Bay WI 54301-1243
      Phone #: 920-336-5333
      800 #: 877-336-5333
      e-mail: mums@netnet.net
      Home page: http://www.netnet.net/mums/
    • Madisons Foundation
      PO Box 241956
      Los Angeles CA 90024
      Phone #: 310-264-0826
      800 #: N/A
      e-mail: getinfo@madisonsfoundation.org
      Home page: http://www.madisonsfoundation.org
    • NIH/National Heart, Lung and Blood Institute Information Center
      P.O. Box 30105
      Bethesda MD 20824-0105
      Phone #: 301-592-8573
      800 #: --
      e-mail: nhlbiinfo@rover.nhlbi.nih.gov
      Home page: N/A
    • Sudden Arrhythmia Death Syndromes Foundation
      508 E South Temple #20
      Salt Lake City UT 84102
      Phone #: 801-531-0937
      800 #: 800-786-7723
      e-mail: sads@sads.org
      Home page: http://www.sads.org



    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html